Hello @yomynameischlo, welcome to Connect. Getting diagnosed with mono 12 times in what sounds like an 8-year span must be a lot to deal with. While we wait for the other members of this discussion to share their experiences with you, would you be comfortable sharing a bit more with the group? Do your providers think all of these complications are connected? How have you tried to manage the symptoms?

This discussion may also be worth taking a look at and participating in as well, https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/.

HI @yomynameischlo. I too am dealing with recurrent EBV infections. It sounds like you have had a time with it having all those other issues. They sound serious, so I hope you have a doctor who can monitor those things. What has helped for me is diet change (cutting dairy, gluten, eggs at first, to name a few), supplements, lifestyle change, lots of rest, and not pushing myself. I'm also taking L-lysine and just started Lauriciden (monolauren). I have not found a conventional doctor who takes this seriously despite all my EBV antibodies (even active antibodies) out the roof and having debilitating symptoms. I had to leave my job and am soley focused on healing now. There are some doctors that can be found online who have a wealth of info on these sorts of illnesses. I currently am following Bill Rawls, MD Restore Kit Vital Plan. Other ones worth looking into are Evan Hirsch, MD (Fix Your Fatigue - book and website), Rodger Murphree, DC (yourfibrodoctor.com). They offer non conventional treatment. The only treatment from conventional doctors that seems to help some is antiviral medication (Valtrex, Zovirax). I'm taking Valtrex too along with my other stuff. I can't diagnose or treat, so these are only suggestions. I'm sorry you are going through this at such a young age. I was 21 when I had my first bout of recurrent EBV that lasted most of my twenties. However, now there is the internet so it is much easier to come across information. Even joining an EBV Facebook group can be helpful just to find out what is helping others. I learned a lot from doing that. But of course you have to sift through the info and do your own research as well. I'm sure there are others on here who have more to add. Hang in there! Please let us know how you do.