Hi @luannkelly! I'm glad you found this forum. I could have written your first post! I came down with a bad case of mono just a month shy of 21 y/o and not long after recovery ended up with "persistent EBV infection." Unfortunately at that time the internet was not around so I accepted the diagnosis and lived part-time. My thirties went well except for a 9 month relapse. Currently, I am 46 and have been in a relapse for over 2 years. I have had to quit my job because I couldn't even work from home. I know I don't have to explain because you understand the frustrating fatigue. I missed plenty of birthday parties, weddings, and other activities with family and friends. At one point overdoing it was making breakfast! I have been a part of the medical community for over 25 years as an RN and unfortunately, they don't get it. That has been extremely disappointing for me. You are your own best advocate! Join online EBV support groups such as this. Learn about what is helping others. Research it and then make the best decisions you can for your health. I saw an infectious disease MD 2 years ago who dismissed me as they have dismissed others. There are some who have been helped by infectious disease though. It's just hard to find a good one. From what I have learned from fellow EBV sufferers is that it's usually diet, supplements, and lifestyle changes that help the most. In addition to some being helped by taking Valtrex (antiviral med that can be ordered by your primary care doc). I'm currently following a protocol (diet and supplements) by Dr. Bill Rawls who has suffered from Lyme, CFS, Fibromyalgia, and reactivated EBV. Definitely pace yourself! Even if you feel like doing a lot in one day -- don't. You will pay the price. I've learned from experience as I have improved (still a ways to go but am optimistic!). I am sorry for all the stress you are going through right now. That definitely hinders the immune system. Please don't give up, hang in there, be your own advocate, and lean on support groups even if it's just to vent. We have been there. 🙂