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@mikla

Quick follow-up to my own post.

Dr. Cohen from NIH emailed back at 11pm last night. He states that we should be getting EBV DNA PCR test on whole blood to determine if it is CAEBV. I believe this is LabCorp test 139490.

He also said that if CAEBV is confirmed through this test he would be happy to provide advice to my doctor or even see me to NIH in Bethesda, MD for evaluation.
https://www.niaid.nih.gov/research/jeffrey-i-cohen-md-laboratory-infectious-diseases

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Replies to "Quick follow-up to my own post. Dr. Cohen from NIH emailed back at 11pm last night...."

---How does one make an appointment for a EBV workup with Dr. Cohen?
---Does Dr. Cohen have criteria for accepting a patient to evaluate?
---I have had 4 tests that were performed under the test name "EBV Acute Infection Antibodies" plus some other tests with skewed values.
---Does NIH have an appointment protocol to follow?
---I found online what I presume to be Dr. Cohen's nih email.
---Have you found any other doctors in the Washington area who are very knowledgeable about EBV?
Thanks.