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Is chronic reactivated EBV different from chronic active EBV?
Infectious Diseases | Last Active: Oct 9 4:22am | Replies (221)Comment receiving replies
Hello, @mikla, and welcome to Mayo Clinic Connect. Sorry to hear some of your post was lost. It would be great to hear a bit more of your story, if you'd like.
How are you feeling about the results of your Epstein Barr Virus (EBV) test?
Replies to "Hello, @mikla, and welcome to Mayo Clinic Connect. Sorry to hear some of your post was..."
Quick follow-up to my own post.
Dr. Cohen from NIH emailed back at 11pm last night. He states that we should be getting EBV DNA PCR test on whole blood to determine if it is CAEBV. I believe this is LabCorp test 139490.
He also said that if CAEBV is confirmed through this test he would be happy to provide advice to my doctor or even see me to NIH in Bethesda, MD for evaluation.
https://www.niaid.nih.gov/research/jeffrey-i-cohen-md-laboratory-infectious-diseases
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Had some site problems where the “less than” sign caused some issues... anyway...
Just got my test back:
IgM - Negative (less than 36)
EA IgG - Positive (28.7)
VCA IgG - Positive (308)
EBNA IgG - Positive (169)
The lab actually called me (on a Saturday) as an “alert” popped up on their system indicating it they needed to alert me immediately and recommended I see a doctor ASAP. They offered to call them directly and fax a copy of the results. The numbers are a little worse than a year ago. Not a single doctor would agree I had a reactivation, including my hematologist so I ordered the test myself on the Internet.
I have the typical symptoms including fatigue/tiredness, swollen lymph nodes, feverish, joint pain and headaches. Been having these for over a year now.
Got a call into my PCP and will follow up tomorrow. I also sent Dr Cohen an email at the NIH asking for advice and steps I might take.
Guess we we will see what happens. Just another thing to add to the list of my chronic cervical pain and constant PVCs. I’ve already had, and fought off, prostate cancer. But I refuse to feel bad as long as I wake up every morning.