My husband was diagnosed with CAEBV about a year ago & our doc referred us to an ID specialist. Unfortunately, we didn't know the guy was semi retired, & we couldn't seem to get in. So now, he's finally gotten in to see another ID Dr., who is running all the same labs as before. So we have to get the diagnosis confirmed. Was hoping to find out more info...
Anyway, initially he had mono symptoms for several weeks & then seemed to be doing really well for a while. Here lately, he feels bad, and I've noticed he looks pale when he exerts himself, tho his blood work has not shown he's anemic. Anyway, so glad there is a forum here and hoping to find some good treatment options for him.