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Profile picture for acapulcoheart @acapulcoheart

It has been 9 months for me and I still take naps and now i have widespread pain throughout my body as if arthiritis as taken ovet my entire body .Its hard to walk and I just don't want to move my body at all because of it. Before Mono i was a non stop person.I cant get anyone to truly heear me who specializes in this

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Replies to "It has been 9 months for me and I still take naps and now i have..."

Hi. I have all the symptoms you have and you feel like someone dropped you from a 20 story building. Ice cold night sweats, treated for low Vitamin D. Anemia, palpitations, neurological issues manifesting in my vision. It will be like I am looking at the sun with my eyes closed. Those episodes last about 10 - 20 minutes. I get shaky and my heart will start pounding and beating super fast then the palpitations come. Yeah. I feel for you. My doctor said there is no treatment and to see a psychiatrist for my symptoms. Haha. Yep. So I am in pain management. There is a support group called stuffthatworks.org and so many people have blown their life savings on naturalpathic/functional doctors that cost a fortune and they are all still sick. Some protocols may hold the disease back a bit, but inevitably it wins. I am sorry you are going through this. I am 48 and was just diagnosed in April 2023. It was almost a year of being sent to every doctor under the sun etc. Relieved to have a diagnosis and am letting nature take its course. Much love and try to stay strong buddy.

@acapulcoheart
I am 61 yrs old, & have had EBV reactivation for 7-8 months. ID specialists in my health plan wont see me because there are no treatments to cure it. I have found one doctor Vivian Von Schaeffer in California that treats it, but the treatment is not FDA approved in the United States. She works on a cash only basis and cost, for me anyway, is more than I can afford and she doesn’t take payment plans. I do not understand why there are not more physicians in the US or able to treat this virus with the amount of technology we have. If anybody knows of other physicians in California able to treat us please reach out. Thank you.