← Return to Is chronic reactivated EBV different from chronic active EBV?

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@JustinMcClanahan

@memecat28, welcome to Connect and thank you posting this question. Because my own knowledge is also limited, I did a bit of research on Mayo Clinic's website. I was able to find a response from James M. Steckelberg, M.D. of the infectious diseases department:

"Most cases of mononucleosis are caused by infection with the Epstein-Barr virus (EBV). Once you're infected with EBV, you carry the virus — usually in a dormant state — for the rest of your life. Periodically, however, the virus may reactivate. When this happens, the virus can be detected in your saliva — but you're not likely to become ill. Rarely, reactivated EBV may cause illness in people who have weak immune systems, such as those who have AIDS.

Mononucleosis rarely leads to a serious condition called chronic active EBV infection, which is characterized by persistent illness more than six months after the initial mononucleosis diagnosis."

I am not a medical professional, but I interpret reactivated as testing positive again but likely without symptoms and active EBV as having persistent symptoms that do not go away, which can be serious.

@memecat28, you mentioned you did your own research so I apologize if this is repeat information. If you don't mind sharing, are you currently experiencing symptoms?

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Replies to "@memecat28, welcome to Connect and thank you posting this question. Because my own knowledge is also..."

I am. I complained of chronic fatigue to my doctor at my new patient appointment and she ordered an array of tests. Everything came back normal except for vitamin d was low and the EBV tests were positive. I don’t really remember a point in my life I wasn’t tired, it was always just explained by life corcumstances. My previous doctor told me my intermittent chest pain, palpatations, muscle pain, fatigue and general malaise was all anxiety. My new doc has actually listened to me and ordered tests. Lately I have just been very fatigued and my lymph nodes are swelling off and on and I occasionally have a low grade temp.

I have had Lyme disease for almost 40 years - 12/13 yrs undiagnosed. I am still plagued with symptoms and the EBV came up in my bloods some time ago as highly positive. I am cautiously commenting that there seems to be a connection between the two diseases. If so, and now I am off of abx, but barely able to put in any effort or energy during the days nor sleep at night, might it be wise to start the medicine again. They are not looking for this in my bloods at the moment by my ”eminent “ Lyme literate PA.
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