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I took peg interferon and ribvirin for 48 weeks from 2002 to 2003. I was born with the hep C and transmitted it to my son. My mom almost died and had a life saving liver transplant in 2000. It scared me tremendously for her but also for myself. In addition,
I was in dentistry and left like I had leprosy. I knew in my heart that I desperately needed to kill this virus. I will say interferon has been the worst decision I have ever made in my life. I have suffered from extremely painful depression, anxiety, fatigue, hypothyroidism, food intolerance, and hair loss ever since. I turned jewelry black while I was taking the injections and perfume smelled weird on me. That is the least of my worries though.
My quality of life has been pure hell due to my mental well being. I would have rather have died from Hep C and had a short happy life than to suffer this anguish. If I received 100 million dollars for taking interferon I would have declined in a heart beat. I've never been the same. I lost my personality, joy, ambition , intelligence, energy...basically my whole essence of what it means to be alive and thrive. Now, I just exist in misery. I have tried practically everything to try and get help to no avail. Doctors and psychiatrists seem to think its all in my head. All I know is that I used to be super happy, confident, ambitious and fun. I have had to pretend to try to be a fraction of who I used to be. The mask is hard to carry. The pain of life has been beyond hard for 19 years. How could they have ever given this medicine to any human being? This is truly hell on earth.
Replies to "I took peg interferon and ribvirin for 48 weeks from 2002 to 2003. I was born..."
I knew two people who were too sick to take the medicine and died. And I had another friend who was smart enough to do research and refused to take the medicine, she also died.
I am a single mom who is just trying to stay alive for her sons. If not for them, I would prefer death over feeling like this every day.
The only time I feel half myself is when I have pain meds that help bring back who I used to be before the medicine. But they are hard to come by too in Seattle.
All the rare side effects. LOL. It said nothing about how they might last forever.
No doctor really cares. Not one doctor has asked to see the lab reports during the time I was on treatment.
It is all there in the lab reports proving their negligence, that is why they didn't want to give them to me.
Take care, write anytime.
I haven't posted anything on here in probably a year, year and half. I was just skimming thru my back up of emails. And saw your post. I'm afraid I don't have any answers for you. Sorry, but reading your post reminded me. That there's thousands,tens of thousands, maybe even hundreds of thousands of us. All suffering the same existence. The one thing that seems to be the overwhelming thing we all say. Is had we known then, what we know now. We never would have taken the stuff. Rather to die of the hep c. Interferon and rebotol totally blew my candle out. Not even the same man I was before. People might see me appear to be happy. But they don't know the misery behind the smile. I keep on going tho. Hopeful that I can come across some natural medicine to help me. And also hopeful that some attorney someday will look at all the cases of people who's lives were ruined. And sue the s-it out of those responsible for using us as guinea pigs. Hope you find some help. Alan.
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JOLI, My Thoughts, prayers and blessings got out to you!
I know how it must feel as I have gone through some of the side effects of different medications! You keep asking why me! I thought doctors were supposed to help me not hurt me!
It really is maddening when you are given a drug and the doctor said you won't have any issues! Then you live throu Hell with similar side effects you have had! Then three years later you see an advertisement for the drug and then they list the side effects of what you went through but was not listed years before when you were given the drug!
Again my thoughts and blessings go out to you!
From, The Land of Enchantment!
Sundance(RB)