Post Interferon Syndrome

Posted by jerbobs @jerbobs, Jan 31, 2018

What is known?

Interested in more discussions like this? Go to the Infectious Diseases Support Group.

@jwbeenie

I also want to add that its ironic that a large amount of people post interferon all seem to be getting a Fibro diagnosis. Isn't that odd?

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My fibromyalgia started shortly after ending treatment

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@ldestella

morning, i just got off of the phone with Merck...who bought out Schering-Plough whom MADE THE INTERFERON N RIBAVIRON. I reported the drug to them n when n where. also told them i am seeking a lawyer...they asked me questions for 30 min. Anyone interested in going this route pls PM me. i also turned this in to FDA

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How do I pm you

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@jenglereckedbin

Hello are you in the USA ? I live in UK

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That's great News!! Well done as I'm in the UK I don't suppose I will be able to contribute 🤔 I'm hoping there will be something similar here too x

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@cynthsick

My fibromyalgia started shortly after ending treatment

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I hope you regain some strength some how x maybe there is a support group in your part if the world. How did you get diagnosed? You must of had a good Doctor. I have been going through the same old load of symptoms as are thousands of us never getting anywhere with medical support but then I am talking of the nhs.....maybe I should look into private health care ?

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@freehepc

How do I pm you

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hello, just hover the curser over my name!! I look forward to hearing from u!!! xo Lisa

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@cynthsick

I was on the telapravir/interferon/ribaviron drug trial around 2009-2010 and cleared the virus in 6 months. I have been very sick ever since then. Diagnosed with fibromyalgia shortly after ending treatment, then rheumatoid arthritis and now sjogrens syndrom. Have been in chronic pain since then. My life has been in decline since then. I was shocked to see that there are others out there having similar issues.OMG. Has anybody talked to any doctors about this?

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Morning!! I have gone to all of my docs n NOT ONE OF THEM WILL ADMIT THIS!!!! I will find one no matter what it takes n I will be contacting everyone soon...I have a plan lol xo

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@jenglereckedbin

That's great News!! Well done as I'm in the UK I don't suppose I will be able to contribute 🤔 I'm hoping there will be something similar here too x

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Hello, start by making sure every health issue is documented by all of ur docs. make sure they know all about this blog, make sure u turn these meds in to FDA...here in US that's the food n drug administration..., call Merck the maker's of these two drugs at their ADVERSE EFFECTS department. make sure sure sure u tell Merck that u just figured out what is wrong with u via this website because there is a statute of limitations...just tell them the truth, if u know the doc that treated u with these meds, go back to him n spill ur guts, don't let them act so surprised cuz this is not new news, u have to get all of this documented n PUSH THE POST 'S WEBSITE ON INTERFERON N I HAVE MANY OTHER RESOURCES..just start there n pls don't hesitate to contact me xo

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@ldestella

Hello, start by making sure every health issue is documented by all of ur docs. make sure they know all about this blog, make sure u turn these meds in to FDA...here in US that's the food n drug administration..., call Merck the maker's of these two drugs at their ADVERSE EFFECTS department. make sure sure sure u tell Merck that u just figured out what is wrong with u via this website because there is a statute of limitations...just tell them the truth, if u know the doc that treated u with these meds, go back to him n spill ur guts, don't let them act so surprised cuz this is not new news, u have to get all of this documented n PUSH THE POST 'S WEBSITE ON INTERFERON N I HAVE MANY OTHER RESOURCES..just start there n pls don't hesitate to contact me xo

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Thank you Idstella you give me the courage to start the fight xx

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@jenglereckedbin

Thank you Idstella you give me the courage to start the fight xx

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Pls do sweetbaby...I'm not gonna stop until I get public acknowledgement n an apology n more! This is wrong in every way

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Dear Idstella. I take inspiration from you and admire your strength and courage. Here in the UK I have not yet found any campaign or organisation challenging the Merck company that manufactured the Interferon. Have I got that correct? I will need as much info as possible to bring this subject forward. In April there is a very big enquiry begining in London about the NHS Contaminated Blood scandal in which thousands of people became infected with Hep C and HIV via blood transfusions and blood products and hundreds of people have died. Many people are waiting for liver transplants and many others are fighting HIV and cancer. I will be contributing to this enquiry with my story. Wouldn't it be wonderful if an enquiry could be made about the Interferon Drug? At present I do not feel there is enough evidence to present a case except for research off the internet and this website. However I do belong to a group about NHS Contaminated Blood in which most members have similar stories regarding Hep C and post treatment so I feel this maybe a good starting point ? What do you think ? X

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