Thank u so much. I too, can't remember anything anymore. If given a choice, I would def not of taken the interferon. It didn't even clear the virus. I was one of the first to get salvaldi feb 2014 and took hcv away in a month...thank God. Pls keep in touch. OH, did u say a doctor told u these symptoms ARE from interferon?
Lisa

Hello, may I pls ask what u mean by how can one person can suffer all of these? I have many more things i haven't included lol pls elaborate!
Thanks, Lisa

I believe it is from treatment. There are too many cases of people with similar symptoms that have lasted a long time after treatment has been finished. I have been doing research on others out here. There is no way that I'm the only one that still has lingering effects 8yrs later. Sure enough, there are several of us!

I went thru treatment with intron A in 95 and then again with ribavirin and peg interferon in 2010. I'm SVR now and clear but this year is the first year I've felt some (but not much) improvement of my brain fog, malaise, bone aches, joint aches, and everything else. I was tested for everything under the sun and was finally diagnosed with fibromyalgia and myofacial pain syndrome. I spoke with my gastroenterologist doc and my family doc about long term side effects. They said there was no evidence of any documented. I showed my gastro doc forum after forum of people who had my symptoms and said I'm not going crazy and how do I get someone to study this? I still dont feel like i did prior to treatment and have widespread pain. I often wonder if my symptoms are from fibromyalgia or from the interferon? There are so many hep forums where 50% of the people complain of long term problems that are all similar. Oh ya.. my eyesight is also shot now too. Happened rapidly the first 3 years after treatment. Just sayin. I hope we make enough noise to make a difference and get someone to HEAR us. Thanks!

@johnwhitfield

I’m in the same boat. 18 years later, 37 years old & I feel like I am a complete mess! Have you had any help from any of your doctors?

I developed fibromyalgia, RA,still in constant pain,eyes are going,I see flashes in peripheral vision at night, hip impingment,shoulders giving out, anger and rage. Big pharma poisoned me plain and simple,dr who prescribed Pegysus to me retired never told me of the severity of this poison. Neuropsychiatric damage.

Hi John, I was in a trial in South Australia in 1998 to 1999, I had to inject my stomach or thigh 3-4 times a week for nearly a year, since then I have been diagnosed with Rheumatoid arthritis, I have chronic headaches and a memory like a 90 year old

I finished my treatment (48 weeks) in 2010 and my body is still a wreck. I know the 1200mg of ribavirin hurt as well. Memory is just part of it for me. I am still unable to work a full time job