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Are there any other pre-liver transplant caregivers out there?
Transplants | Last Active: Jul 29, 2018 | Replies (195)Comment receiving replies
Dear friends thru transplant,
Just now, I have scrolled thru these 9 pages of conversations, and I am amazed at the journey that we have been on together. We have learned much together and shared valuable information from our own experiences. I hope that you (caregiver and patient) are getting thru this process.
I know that this road is full of bumps and sharp turns, like a wooden roller coaster. As a recipient, I clearly remember just hanging on!
@rose999 @gaylea1 @jeanne5009, @jodeej @yuppaal @contentandwell, @chevynova67 @mauraacro, @gaybinator, @28snash @marynlogan @bamagirlgina
How are you doing? How are things, in general, going in your lives?
What information might you pass on to a new caregiver?
Strength and Hope to all of you.
Rosemary
Replies to "Dear friends thru transplant, Just now, I have scrolled thru these 9 pages of conversations, and..."
@amyintucson There is nothing like a creative side to help keep you balanced in your life struggles. I would not let it get to far away from me because it makes a "great distraction for what worries us"
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@jeanne5009 hi Jeanne. Things sound as if they are going well except got your MELD going in the wrong direction. I guess you should be happy because that means that your health and condition have improved but if you don’t feel well it must be discouraging. I have a hard time understanding how some people who seem so sick have low MELDS and others like me who had higher MELDS were able to live almost normal lives through most of the waiting time. I guess I was just extremely fortunate to have been able to function so well.
JK