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Camptocormia (bent spine syndrome or BSS): Looking for others
I have been diagnosed with Camptocormia ( bent back syndrome ) recently and having a hard time doing what I used to do caring around a rollator and a cane. Finding information and people besides medical terms has been difficult if not impossible. Only found two people and neither one will talk about it. I have a mild case of CP but that has never really been an issue until now and it gets in the way since being diagnosed with Camptocormia. I also have venous statious in my legs and have to be careful not to even brush them up against anything. Add to that being diabetic also with a weight problem because of inactivity. I am looking for solutions to the Camptocormia as meds have not worked and trying the botox injections again coming up in a few weeks with a new Doctor. Also looking or starting to look for some kind of brace that might hold me up if the botox doesn't work or does not work fully. Found a brace support system but they have not found a producer for the manufacture of them yet so hanging in there for that to happen. Suggestions or comments welcome..........
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Still looking to hear from anyone that has Camptocormia.................
Camptocormia
Now have a partial torn hamstring so it just doesn't get any better on top of having Camptocormia. Along with having a mild case of CP and venous deficiency and arthritis beginning to be more prevalent in my joints life is good. Just can not find anyone else to ride the boat with me.
Cannabis Oil for Camptocormia anyone think it would help ?
Hi, @wiserranter - hoping that @mschock @eaz1701 @rjmcb will return and have some input for you on camptocormia.
What did your doctor say about the hyperextension brace? How has the hamstring healing gone?
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1 ReactionHamstring has healed and the brace would not work as it would still let me bend at the hips so still sitting back at square one so hoping someone else have had better results thanks for asking.
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3 ReactionsI was diagnosed with camotocormina three years ago. If I try to walk without sticks, the rollator or use my mobility scooter, I have terriblellwer back pain. The more I bend over the more mobile I am, even though at a very slow pace and not being able to see where I am going. If I try to look up then I get severe neck pain. The only relief I have from this condition is for a very brief spell when I first get up in the morning or when I am sitting down. though the more I walk the more I suffer from pain and discomfort. I had two MRIs which showed my para spinal muscles have wasted away. Nobody knows why this has happened. I tried physio, but the physiotherapist discharged me as there was nothing they could do for me. Exercise or movement makes the condition worse. Camptocormia has disabled me as I need wheels to get me around. Even the rollator now is of little help. I’ve been told by the neurologist that there is no cure. I have no choice but to live with this disabilitating condition. I do sympathise with you.
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1 Reaction@ caprice123 seems like I am headed in the same direction that you are in but I refuse to let it happen. I am staying busy but have noticed that I am getting worse so I may not be able to fight it like I have been doing. I am hoping that someone has a cure for this condition so that I may continue my fight but believe that I may be running out of time but not giving up.
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1 ReactionCamptocormia
There was some discussion on here last year does anyone know of brace or taping that will stop my bent over posture