Camptocormia

Posted by WiserRanter @wiserranter, Jan 29, 2018

I have been diagnosed with Camptocormia ( bent back syndrome ) recently and having a hard time doing what I used to do caring around a rollator and a cane. Finding information and people besides medical terms has been difficult if not impossible. Only found two people and neither one will talk about it. I have a mild case of CP but that has never really been an issue until now and it gets in the way since being diagnosed with Camptocormia. I also have venous statious in my legs and have to be careful not to even brush them up against anything. Add to that being diabetic also with a weight problem because of inactivity. I am looking for solutions to the Camptocormia as meds have not worked and trying the botox injections again coming up in a few weeks with a new Doctor. Also looking or starting to look for some kind of brace that might hold me up if the botox doesn’t work or does not work fully. Found a brace support system but they have not found a producer for the manufacture of them yet so hanging in there for that to happen. Suggestions or comments welcome……….

These are pictures of the back brace I use and would strongly recommend giving it a try if you are experiencing Bent Back Syndrome/Camptocormia. Do a Google search for Hanger orthotics near you. They advertise that they have hundreds of clinics across America.

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@rjmcb
Was your back brace custom made for you? I did a google search and came up with this picture which looks a little different, http://www.hangerclinic.com/bracing-support/spinal/Pages/Spinal-Orthoses.aspx

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@rjmcb wow finally finding someone that has the same condition is almost as exciting as finding a brace. Just wondering if that brace gives full support when you let go of your walker. Speaking of walkers, I found one called " The Upwalker " that has high elbow pads to lean on and has helped tremendously and keeps me straight up. The Hanger clinic is here in town so might give the brace a try. The brace looks like it would still let me bend at the waist though. Went to a place that I thought would be good in finding a brace but they didn't seem interested in going all the way in finding one that would work. They found one but I looked like a star wars little man and if you touched me I would have fallen over. Would you be interested in receiving a phone call so we could talk ?

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If anyone would like to talk about this condition please send me a personal message and I will respond to you, thanks

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The brace that he is talking about is called the Hyperextension Brace looking into it now and will let everyone know what my Doctor thinks about it as he wants to look into what the brace will do for me that other braces have failed, stay tuned and again please send me a private message if you would like to talk about our condition, thanks

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Still looking to hear from anyone that has Camptocormia……………..

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@wiserranter

Still looking to hear from anyone that has Camptocormia……………..

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Camptocormia

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Now have a partial torn hamstring so it just doesn't get any better on top of having Camptocormia. Along with having a mild case of CP and venous deficiency and arthritis beginning to be more prevalent in my joints life is good. Just can not find anyone else to ride the boat with me.

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Cannabis Oil for Camptocormia anyone think it would help ?

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Still looking for someone to reply ?

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Still looking for someone with Camptocormia

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@wiserranter

Still looking for someone with Camptocormia

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Hi, @wiserranter – hoping that @mschock @eaz1701 @rjmcb will return and have some input for you on camptocormia.

What did your doctor say about the hyperextension brace? How has the hamstring healing gone?

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@lisalucier

Hi, @wiserranter – hoping that @mschock @eaz1701 @rjmcb will return and have some input for you on camptocormia.

What did your doctor say about the hyperextension brace? How has the hamstring healing gone?

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Hamstring has healed and the brace would not work as it would still let me bend at the hips so still sitting back at square one so hoping someone else have had better results thanks for asking.

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I was diagnosed with camotocormina three years ago. If I try to walk without sticks, the rollator or use my mobility scooter, I have terriblellwer back pain. The more I bend over the more mobile I am, even though at a very slow pace and not being able to see where I am going. If I try to look up then I get severe neck pain. The only relief I have from this condition is for a very brief spell when I first get up in the morning or when I am sitting down. though the more I walk the more I suffer from pain and discomfort. I had two MRIs which showed my para spinal muscles have wasted away. Nobody knows why this has happened. I tried physio, but the physiotherapist discharged me as there was nothing they could do for me. Exercise or movement makes the condition worse. Camptocormia has disabled me as I need wheels to get me around. Even the rollator now is of little help. I’ve been told by the neurologist that there is no cure. I have no choice but to live with this disabilitating condition. I do sympathise with you.

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@ caprice123 seems like I am headed in the same direction that you are in but I refuse to let it happen. I am staying busy but have noticed that I am getting worse so I may not be able to fight it like I have been doing. I am hoping that someone has a cure for this condition so that I may continue my fight but believe that I may be running out of time but not giving up.

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