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Newly diagnosed with Parkinson

Posted by oronogo @oronogo, Jan 1, 2018

I’m newly diagnosed with Parkinson, and waiting to get accepted by Mayo Clinic for a second opinion. I am a current heart patient at Mayo’s so hoping they will accept me. Has anyone else been accepted by Mayo? I am having tremors in right hand, I was not told locally what stage it is. The doctor wanted to start medication, but I wanted a second opinion first. I’m 75 year old female. I have been having some deep tissue messages that I have found helpful. I had a brain and neck MRI done locally. Thanks for any help you might have.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

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marie | @mariemarie | Jan 2, 2018
In reply to @lsdempsey "I have also begun stretching (not consistent). My son is a Tae Kwon Doe instructor and..." + (show)
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I have also begun stretching (not consistent). My son is a Tae Kwon Doe instructor and he has started my on the body bag and it really seems to help.

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Steve...sounds like you have a grip on your pd. Great for you!!

Marie

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ggopher | @ggopher | Jan 2, 2018
In reply to @mariemarie "Steve what exercise did doc recommend? Marie" + (show)
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Steve what exercise did doc recommend?

Marie

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Works for me, I need to walk for osteoporosis anyway.

Steve  

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ggopher | @ggopher | Jan 2, 2018
In reply to @lsdempsey "I have also begun stretching (not consistent). My son is a Tae Kwon Doe instructor and..." + (show)
Profile picture for Steve @lsdempsey

I have also begun stretching (not consistent). My son is a Tae Kwon Doe instructor and he has started my on the body bag and it really seems to help.

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Thanks.

Steve  

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ggopher | @ggopher | Jan 2, 2018
In reply to @lsdempsey "I have also begun stretching (not consistent). My son is a Tae Kwon Doe instructor and..." + (show)
Profile picture for Steve @lsdempsey

I have also begun stretching (not consistent). My son is a Tae Kwon Doe instructor and he has started my on the body bag and it really seems to help.

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I just tell myself it is a condition and not a sentence and lead as normal life as I can.

Steve  

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 2, 2018

I agree with you all, PD does not define us - it's just something we have to live with.

Teresa

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Steve | @lsdempsey | Jan 2, 2018
In reply to @lsdempsey "I have also begun stretching (not consistent). My son is a Tae Kwon Doe instructor and..." + (show)
Profile picture for Steve @lsdempsey

I have also begun stretching (not consistent). My son is a Tae Kwon Doe instructor and he has started my on the body bag and it really seems to help.

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Thanks

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marie | @mariemarie | Jan 2, 2018
In reply to @hopeful33250 "I agree with you all, PD does not define us - it's just something we have..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

I agree with you all, PD does not define us - it's just something we have to live with.

Teresa

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Teresa, agree with above.

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oronogo | @oronogo | Jan 2, 2018
In reply to @hopeful33250 "Hello, @oronogo, and welcome to Mayo Connect! I am sorry to hear that a Parkinson's (PD)..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello, @oronogo, and welcome to Mayo Connect!

I am sorry to hear that a Parkinson's (PD) diagnosis (DX) is what brought you to us, but there are many of us who have a PD DX and we know how difficult it is to accept and deal with. I am glad that you are getting a second opinion at Mayo. We strongly believe in second opinions. There might be those in our group who have been to Mayo Clinic and perhaps they will respond to your post with their experiences soon. As you know, Mayo Connect is an online community and we are from all over the country (and world).

You mentioned that your diagnosis came about with tremors in your hands. Have you had other symptoms such as balance problems, unsteadiness of gait, stiffness, drooling, etc.?

Here are some links to basic information about PD, https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/symptoms-causes/syc-20376055 and http://www.parkinson.org/. As you read them, you will find valuable information in understanding PD's symptoms and treatments.

All of us in the PD discussion group look forward to getting to know you, I would like to invite some other members into this conversation, @ggopher and @mariemarie. I'm sure that they will join me in welcoming you to our group.

Teresa

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Thank you for the reply. I have had some balance and stiffness, but it’s not bad. I do exercise and walk. My concern is that I haven’t started any medication, but some of the articles say they haven’t started meds yet. I don’t want to start meds, but my local dr led me to believe that meds will keep it from progressing as fast. My father had PD when he was older.

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