MAC as a result of Crohn’s disease

Posted by pinktower @pinktower, Dec 29, 2017

Is there anyone else on here that has developed bronchectasis and MAC as a form of Crohn’s disease having moved into the lungs?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

pinktower | @pinktower | Dec 31, 2017

Also, I am somewhat concerned as to why all my medicines are so much higher dosage than the ones everyone else is listing. For example my Ethambutol is 1,600 ( I take 4 tablets) per DAY, not 3x per week. All three of my drugs are much stronger than the amounts I see on this forum, and I am a small person, if that matters at all. I am treated at Mayo.

Colleen Young, Connect Director | @colleenyoung | Dec 31, 2017

Hi @pinktower
I did a bit of poking around and found several articles about Crohn's and MAC or more specifically the mycobacterium avium subspecies called mycobacterium avium paratuberculosis (MAP). Here are a few articles:
Mycobacterium paratuberculosis as a cause of Crohn's disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4894645/
Ulcerative colitis and Crohn's disease: is Mycobacterium avium subspecies paratuberculosis the common villain? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3031217/

Crohn's MAP Vaccine - research site http://www.crohnsmapvaccine.com/

From quickly reading some of this literature it appears that MAP is being investigated as a cause of Crohn's and not the other way around. Had you understood that Crohn's caused the MAC infection in your case, PinkTower?

I think @windwalker @kanaazpereira and @tdrell will be interested in this information too.

pinktower | @pinktower | Dec 31, 2017

In reply to @colleenyoung "Hi @pinktower I did a bit of poking around and found several articles about Crohn's and..." + (show)

What I believe InfectiousDisease and Pulmonology at Mayo agreed upon is that the bronchiectasis was caused by the Crohn’s. This bronchiectasis provided an excellent home for the MAC/MAI to infect my lungs. I asked the pulmonologist this week about the MAP connection. He said that’s something else. I don’t have that one. I have MAC.