1. < MAC & Bronchiectasis

Questions about treatment, alcohol and doctors in Phoenix

Posted by trissi @trissi, Dec 27, 2017

Hi, I am new to the group. I have been to the ID doctor and was prescribed Rifampin at 300mg, Aziithromycin at 500mg, and Ethambutol, at 400mg. I have not started any of them since I was told by the doctor not to drink alcohol at all while taking them and I wanted to enjoy the holidays! There is no warning on any of the vials to avoid alcohol. What are you guys being told? Also, is it true that, for the most part, the oral meds are the only way to go. I am concerned about the side effects. Did any of you get a second opinion on the treatment? If so, can you recommend anyone in the Phoenix area? I was diagnosed with MAC only. Thanks for any input!

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Jen_b | @jenblalock | Jan 17, 2018
In reply to @windwalker "@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't..." + (show)
@windwalker

@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't move her way due to the fact that I get sick often in Virginia, could be the climate, but I suspect higher organism count; mold etc. How old are your grandkids? Sounds like you are headed for bliss!

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@windwalker I understand. To be honest, I'm more excited about being near my daughter than the grandkids. They are fun but I love being with my daughter. We have fun together. 🙂

REPLY
ling123 | @ling123 | Jan 17, 2018
In reply to @windwalker "@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't..." + (show)
@windwalker

@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't move her way due to the fact that I get sick often in Virginia, could be the climate, but I suspect higher organism count; mold etc. How old are your grandkids? Sounds like you are headed for bliss!

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@windwalker I'm in similar shoes. No, I don't have a child who has opted out of having children. I don't have any myself. Not really by choice, though. Just circumstances that made it next to impossible to have them until too late. But I do have two beautiful nieces who have most adorable children. One has a 3-year-old son and a brand new daughter and the other has a 2.5 year-old little boy. I love my nieces as if they are my own and I love my grand niece and nephews even more. So I feel like a proud grandmother watching them grow up. I wish I could live closer to any of them. But I don't. So Facebook pictures would have to suffice.

REPLY
Jen_b | @jenblalock | Jan 17, 2018
In reply to @windwalker "@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't..." + (show)
@windwalker

@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't move her way due to the fact that I get sick often in Virginia, could be the climate, but I suspect higher organism count; mold etc. How old are your grandkids? Sounds like you are headed for bliss!

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@windwalker In fact, her mother-in-law is going to move there also and she LOVES taking care of the grandkids. The whole thing. I enjoy doing things with them but I raised two kids already and have no desire to do any of that caretaking stuff again except for short stints.

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Jen_b | @jenblalock | Jan 17, 2018
In reply to @windwalker "@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't..." + (show)
@windwalker

@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't move her way due to the fact that I get sick often in Virginia, could be the climate, but I suspect higher organism count; mold etc. How old are your grandkids? Sounds like you are headed for bliss!

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@ling123 My sister-in-law has that situation. She has no children of her own but has a niece and nephew who she is very close to and her niece has children who are like her grandchildren.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 17, 2018
In reply to @windwalker "@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't..." + (show)
@windwalker

@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't move her way due to the fact that I get sick often in Virginia, could be the climate, but I suspect higher organism count; mold etc. How old are your grandkids? Sounds like you are headed for bliss!

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@jenblalock, I hear ya, daughters rock! I go up to Va. and hang with mine every 6 weeks. I just love her to pieces.

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ling123 | @ling123 | Jan 17, 2018

@jenblalock Over the years I have come to see the benefit of being a doting aunt and great aunt. I can have fun with them and spoil them without any of the heavy stuff that parents carry all their lives.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 17, 2018

@ling123, I will not ever have grandchildren, but I enjoy my sister's grandkids as if they were my own.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 17, 2018
In reply to @windwalker "@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't..." + (show)
@windwalker

@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't move her way due to the fact that I get sick often in Virginia, could be the climate, but I suspect higher organism count; mold etc. How old are your grandkids? Sounds like you are headed for bliss!

Jump to this post

@jenblalock, I feel the same way. Even if my daughter had children, I would not be the kind of grandmother that would keep them everyday as daycare. I know plenty of people who do, and love it. It just isn't for me. It could be my disease talking though, I cannot fathom having the energy to deal with little ones on a daily basis.

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tdrell | @tdrell | Jan 17, 2018
In reply to @windwalker "@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't..." + (show)
@windwalker

@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't move her way due to the fact that I get sick often in Virginia, could be the climate, but I suspect higher organism count; mold etc. How old are your grandkids? Sounds like you are headed for bliss!

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@ling123...I had an Aunt Helen who was single without kids...we bonded early on and was the joy of my childhood and adulthood. Am sure your Brice/nephew feel the same about you. Tdrell

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 17, 2018
In reply to @windwalker "@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't..." + (show)
@windwalker

@jenblalock, I would give anything if my daughter would move to where I live. I shouldn't move her way due to the fact that I get sick often in Virginia, could be the climate, but I suspect higher organism count; mold etc. How old are your grandkids? Sounds like you are headed for bliss!

Jump to this post

@ling123, That is wonderful Ling. I am very close to all of mine as well.

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