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Third sputum culture rejected - frustrating
MAC & Bronchiectasis | Last Active: Dec 6, 2017 | Replies (27)Comment receiving replies
I was diagnosed with Mac/Bronchiectasis in 2015. I am also a 17 Year Post Liver Transplant Recipient. My current CT scan was not good and I have been coughing for 4 weeks. I too am hard time bringing up enough sputum to sample. I’m nervous about 3 medications at one time and or the Bronchial Wash. Any input would be greatly appreciated.
Replies to "I was diagnosed with Mac/Bronchiectasis in 2015. I am also a 17 Year Post Liver Transplant..."
@mschmidt2, Hello. Congrats on your 17 years with your new liver. I think that is pretty awesome. I am sorry that you developed Mac & Bronchiecstsis. I have read that can happen with transplantees after many years. The three meds are scary, but the bronch wash shouldn't be bad. I have heard that they put you in twilight anesthesia like they do for colonoscopies. Please keep us informed of your progress. I hope you feel better soon.
Thank you for your kind words. I learn more on December 1st. Fingers Crossed z
@mschmidt2 I also invite you to explore the Transplants group here on Mayo Clinic Connect https://connect.mayoclinic.org/group/transplants/ I'm sure people would appreciate hearing from a 17-year transplant recipient. Perhaps here:
* Changes after Transplant https://connect.mayoclinic.org/discussion/changes-after-transplant/
@mschmidt2 We will all keep our fingers crossed for you too.
@mschmidt2 Hi there!Thinking of you and hoping you got good news from your Dec. 1 appointment.
My lungs were doing better, then we got a sudden cold spell. Not helping. My sinuses do not want to clear up.
My MAC is Dormitory right now-Yay! I did have staph infection in my lungs and that too is on it’s way out.
I appreciate the follow up. It’s nice to know there are others going through what I’m going through. Thank you
Connect
Hi @mschmidt2, welcome to the MAC group on Connect.
I encourage you to read some of the main discussion thread in the group and join in:
- (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/
This discussion may also provide some insight:
- MAC antibiotics and side effects https://connect.mayoclinic.org/discussion/mac-antibiotics-and-side-effects/
Have you doctors suggested any precautions as a liver transplant recipient when taking the antibiotics? What concerns you the most?