Hi Colleen: Do you know people who have lost hearing due to radiation treatment for head and neck cancers?

Hi , my name is Joe , Virginia , USA , I had a 10 cm tumor in upper esophagus , now cancer free , squamous cell , diagnosed 8/2019 . I take keytruda every three weeks , and PET scans show no cancer.
Glad and thankful to be cancer free , but radiation treatments did a real number on my esophagus, and it looks like I will have a PEG tube for the remainder of my life .

I would appreciate any support , hints , suggestions , etc ! Thanks , Male , age 58 , non smoker , but I have abused alcohol in the past.

Hello, my name is Erika. From Pennsylvania. I was diagnosed with Metastatic Squamous Cell Carcinoma HPV positive in my neck lymph nodes and they are not finding where my origin is. I was diagnosed on 3/14/23. I first noticed a small lump in my neck in November of 22. I didnt think anything of it until February when I had noticed it had grown considerably. I had my first appoint with PCP on Feb. 14. And since then I have had blood work, ultrasound of the neck, CT scan of neck and then chest, a biopsy of the neck, and then surgery to remove all or part of the node to be ran through the lab. It indeed come back as MSCC +HPV. The CT scan of my chest didnt show much significance. All that was put in the report was Minimal linear atelectasis in the right middle lobe. Few 1 to 2 mm punctate
subpleural nodules noted in the lower lobes. I since had a PAP smear and the results have not come back yet. But on physical examination they noted a few lesions on cervix. I have been set up with a oncologist, radiologist(4-10), and a gynecologist(4-18). My ENT doctor said that my kind of cancer has a good prognosis, but everything I read online says poor prognosis. He also said that it would be better if they didnt find the primary cancer origin. Anyone else have a similar story? Any advice on what to do in the waiting period? Or any advice at all with anything will be appreciated. Im sick with worry.

Hi Colleen,
I’m hoping you can help me out. I’ve been recently diagnosed with throat cancer, base of tongue, HPV positive. I’ve scheduled an appointment with Dr. Moore for next week for an initial consult. I’m traveling from New York for this appointment and my question is whether or not it would be possible to meet with other members of the team i.e. oncology, chemotherapy, etc…. If you could point me to the right person in the department that would be awesome, I’d just like to make the most of my visit there - and I’d like to get treatment started ASAP.

I’ve had all of the tests run at the hospital in New York and we have a treatment plan ready to go. The reason I’m looking for a second opinion is because I was hoping to have de-escalated version of radiation as opposed to the six or seven weeks that my Dr’s here in NY are proposing.

Hello, I'm Michael and new here. I'm 81 years old and survived a squamus cell tumer at the base
of my tongue, for 21 years now. The treatment protical is hidious but surviveable. Now I have
Chemo induced Neuropaty and Oropharyngeal dysphagia. I'm told that nothing can be done.
Bull S..t. I haven't had Peumonia in three months now. I did it but practicing Deep Breathing and holding my breath to expand my lung capacity. It helps. I'm up to 90 seconds, holding my
breath. It may work for you. I also go to the Gym twice a week. That Saved my but. My workouts
are legs and arms and back with dumbells for chest. Cable work great.
PS: I'm a commited introvert. I don't do Zoom. Good luck, Michael