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I have MAC as well and was treated with the big three and could not tolerate ethambutol so my dr. put me on Azithromycin, Rifampin, and inhaled Amikacin. This was effective and got me into remission yet I again tested positive soon after. One drug cannot treat MAC and to put you on that may cause you to become drug resistant. I would find another Dr.
Replies to "I have MAC as well and was treated with the big three and could not tolerate..."
@sandraharthugomn thank you for taking the time to respond.. I am trying to figure out better options for health.
@cowgirlmt, Years back, when I lived in Virginia, a very humid state, I would get bronchitis every year. I would visit family in Arizona and did discover that the dryer climate helped to dry out my lungs. I always felt better there, so I moved there in 1991. Within the first year, I caught Vally Fever. I was very sick for months and it put a small hole in my lung and several nodules. I recovered from that, but was sick with lung issues ever since. My oxygen levels were lower there due to the altitude. I hacked my lungs up every single day. I moved to Bluffton ,S.C. (near Hilton Head) five yrs ago. I live in a coastal town with very sandy soil. Because rainwater immediately drains away; it rarely ever feels damp here. Less dampness, equels less rotting leaves etc. which harbors mycobacteriums. I feel better here than I have in the last 25 yrs due to sea-level elevation, salt air, mild winters, and most of all, my wonderful care at MAYO CLINIC.
@unicorn Hi. Do you have a definitive date to go try the nitric oxide?
@windwalker I am considering moving back to central/eastern Montana. That is where I grew up, and all my family lives at. I never had any issues up there, some allergies during hay season but that is about all. It just will make it hard if I get sick because healthcare will mean flying or a long drive somewhere.. lol Depending on how I feel in the next couple of weeks my provider may be referring me to another infectious disease doctor located in either Shreveport, or New Orleans...
@cowgirlmt, It is good to have a good support system. The love of family can help a lot too.
@cowgirlmt, Dear Kimmy, here are a few links that you might find interesting and helpful. https://www.nationaljewish.org/ntmvideos
https://www.youtube.com/watch?v=U1ZmJAQlgLw
https://www.youtube.com/watch?v=YeomndWSom8
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I lived in Saudi Arabia for 10 years and my Bronchiectasis was awful. So, the drier climate in my case was worse..