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cahnny (@cahnny)

Eye evisceration

Eye Conditions | Last Active: May 10 11:07am | Replies (29)

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@cahnny

Thank you Jamie: I’ll try to remember to come back and keep kind of a log. Just remind me if I slack off…lol. Right now I’m just trying to stay calm and relax. I’m having the procedure done at a specialist’s office. They have an ambulatory surgical section. There hasn’t been must “support” other than very nice people telling me what expect and when to be there.

There’s such a lonnng story leading up to this surgery that I wouldn’t know where to begin. I’ll just really try to capsule it and say… I had RA from an early age….too many steroids over a long period of time before the RA burned itself out. Steroids led to chronic glaucoma and uveitis which led to years of eye problems which finally led to this day. I have other medical issues to so that makes things a little more difficult.

As for what I’m having done right now. Friday the surgeon will perform an evisceration and insert a round globe to hold the shape of the eye. I can just live with that globe and wear a patch or…..I think he said a lense could be made to fit over the front of the globe that would look like a real eye lense. Because of my age and our financial situation and the distance I’d have to travel to go to someone who could make the lense, I’ll probably just live with the globe. I just have to find some place to buy soft patches that won’t irriate my face. My husband says he’s not concerned about the way I’ll look and I don’t go out much so I’m not going to be seen a lot anyway. I’ll just wear the patch when I leave the house.

I’ll come back after the surgery and tell you how it went.

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Replies to "Thank you Jamie: I'll try to remember to come back and keep kind of a log...."

Hello! My husband found this discussion and I am here because I am facing an eye evisceration now. It was this statement that really got me: "I had RA from an early age….too many steroids over a long period of time before the RA burned itself out. Steroids led to chronic glaucoma and uveitis which led to years of eye problems which finally led to this day. I have other medical issues to so that makes things a little more difficult." Me too! I've had juvenile RA since the age of 3, I'm 57 now. Lost the vision in my right eye 10 years ago due to glaucoma secondary to uveitis and longstanding steroid treatments. I'm really nervous about another surgery since I've had so many on my joints, including a neck fusion.

How did your procedure go? Forgive me if I missed that in this discussion because I am legally blind. Were you able to have it done outpatient? What about local vs. general anesthesia? Any complications? How is it living with that eye now? I'm really hoping to hear back from you because we seem to have much in common. Thanks for any input or advice you can offer!!

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