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Waiting on Multiple Myeloma testing

Blood Cancers & Disorders | Last Active: Aug 18, 2021 | Replies (16)
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@JustinMcClanahan

Hi @jenga543, welcome to Connect.

Thank you for taking some time to share some information about your friend and wondering about how long it takes for a multiple myeloma diagnosis.

I would like to invite @beckyoutlaw1115, @jan52241, @sheilasfight, @missouri, @mrsdoc, @mehz4802, @scmsable, @user_ch3a1e07f, @mamaellie, @totopeg, and @larryfairtax to this conversation as they have all discussed having, or caring for someone, multiple myeloma and may be able to share a bit about their experience of being tested and diagnosed.

@jenga543, If you don't mind sharing, how has your friend responded to the prednisone and gabapentin? The waiting period for any diagnosis can be difficult, how are both of you doing?

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Replies to "Hi @jenga543, welcome to Connect. Thank you for taking some time to share some information about..."
jenga543 | @jenga543 | Oct 23, 2017

Thank you so much. There is no relief or change with the prednisone and gabapentin. Initially, he did feel some relief with the original prednisone rx, but has not gotten any relief with the 2nd round. He continues in pain and I believe he has fallen several times, but he won't admit that to me. He is NOT currently affiliated with Mayo, but we are looking into that, as his current doctor is not returning his calls regarding his test results and pain level. Quite frustrating. The hip pain is the most concerning complaint, as he has great difficulty walking. He has 4 phone calls into his doctor's office. I was just trying to find out an idea of how long before the test results become available. It's not a lot to go on, I was just getting frustrated and trying to reach out. Thank you for your time.

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