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Small vessel Ischemic disease

Stroke & Cerebrovascular Diseases | Last Active: Jul 1, 2023 | Replies (66)

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@soloact

i'm glad you posted, Chris. I have a similar situation (I'm in Port Angeles, WA) and know how scary and frustrating it can be not to get any clear, candid, or helpful info from even the specialists. I'm taking my test results to a more urban area (Seattle, probably) to get someone more experienced and better qualified to interpret them -- I hope. When I find the right neurologist and can get an appt, that is.

Some of your symptoms are consistent with Parkinson's, basal ganglia damage (even Lewy Body or vascular dementia, but less so?) -- all pretty terrifying words, I know. HOWEVER, I don't see any indication of any of those in the summary you attached, I think they affect a different area of the brain than where your primary problem seems to be, and I should probably not even mention those things -- am probably "projecting" -- because I am not a clinician of any kind.

These days, we have to be our own patient advocates and keep banging on the pipes even to get heard. Please do that -- fight for yourself, but not constantly and not so the stress makes everything worse. One call a day might be a good goal. And I hope you'll consider getting a referral for a consultation with another neurologist.

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Replies to "i'm glad you posted, Chris. I have a similar situation (I'm in Port Angeles, WA) and..."

Thank you for your replay,I am in Ireland and i think i have a good doctor so fingers crossed