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Behcet's Syndrome: What treatment has worked for you?

Posted by mrmaid11 @mrmaid11, Sep 30, 2017

My name is Shiela and my daughter has been diagnosed with Bechets. Is there anyone who has has success with any kind of treatment. So far not much has worked for her.

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mel66 | @mel66 | Oct 7, 2019

Good evening,. Yes I have begun 250mg BID. Than you for placing my post in the group. I appear to be in a flare again. Be well and I look forward to hearing the experience of others

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mel66 | @mel66 | Oct 7, 2019
In reply to @johnbishop "Hello Maria @mel66 -- Welcome to Connect. I did find an article that mentions the treatment..." + (show)
@johnbishop

Hello Maria @mel66 -- Welcome to Connect.
I did find an article that mentions the treatment and hopefully will provide some helpful information.
ResearchGate - Mycophenolate mofetil as a novel immunosuppressant in the treatment of neuro-Behçet's disease with parenchymal involvement: Presentation of four cases: https://www.researchgate.net/publication/221698914_Mycophenolate_mofetil_as_a_novel_immunosuppressant_in_the_treatment_of_neuro-Behcet's_disease_with_parenchymal_involvement_Presentation_of_four_cases

Have you already started taking Mycophenolic acid? Just wondering if it's helping with your symptoms.

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Thank you I will read the articles. I've read many in the journals. I have hope for this med and realize it may take awhile to integrate into the body . Vasculitis and joint involvement is one of my major symptoms. Neuro is possible. EMG showed nothing last summer, then again the disease was in a remission, though it's never totally gone, symptoms abate to a degree. The drug shows promise . Steroids are not working and Imuran put my liver into acute failure so cannot take it. It did recover thankfully. Thanks again John for your research, all is appreciated and I will post links that are credible as well

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