I have started sweating after eating. Anyone else?

Hello @baxtersmom.

I just wanted to check in and see how you were doing with the nausea and sweating you were experiencing after eating. I know you mentioned you were concerned. Were you able to reach out to your provider or are symptoms better?

@gailb @trbrewer65 @ldramjet @fredheiden I know it's been a while since this discussion was posted, but was wondering how you all were doing related to your symptoms after gastric surgery (sweating after eating, etc.). Have your symptoms been better? What have you been doing to try and alleviate any discomfort?

I have for the last three months experienced these same symptoms. A simple sip of water in the morning activates abdominal pain, throat constriction and sweating and flushing of the neck and face. I have had ct, endoscopy w biopsy, gallbladder ultrasound, 24 hour urine test and multiple comprehensive blood tests.
No conclusions. Symptoms appear very prominent at end of day early evening. That seems to indicate as body processes more food or drink they increase. Blood pressure fluctuation occurs primarily dropping to 90/60, subsequent cold fingers and toes. Returns to my normal after hour or so. Weight loss after first 8 weeks has stabilized at 14 pounds after I decided I better eat, smile. Mayo, I am in the cue for last three weeks but wait is at least until mid January. I would add that locally one physician is concerned about carcinoid syndrome. Attempting to receive nuclear medicine test or PET scan to rule out tumor. Very difficult to forget being told tumor is a possibility.

Hello @krk and welcome to Mayo Clinic Connect.

I am sorry to hear of your unique symptoms without a diagnosis yet. That is frustrating as well as worrisome, isn't it? While Connect is made up of patients like yourself (therefore we cannot make diagnoses), I can say, however, as someone who has had carcinoid tumors, there are aspects of your symptoms that do resemble carcinoid syndrome. Did any of your blood tests check your serotonin levels? Elevated serotonin levels can be checked through the 24-hour urine test and also by a blood test.

Have you had any diarrhea or other digestive pain and/or problems?

If you would like more information on carcinoid tumors we have a discussion group here on Connect. Here is the link, https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/.

When will you know if you will be able to have the nuclear tests?

The urine test came back inconclusive.
I basically have had mild, by my standards, abdominal pain for months w the throat constriction and sweating.
I have damaged spine due to accident so pain is subjective to me, been living w that for decades. I have had polythycemia since I was 35 (now 70) but complicating this latest issue is two years ago I flipped to anemia which has puzzled the hematologist. One other symptom is since this started is fluctuating blood pressure. Prior to this I had mild elevated BP treated w small amount of drug but since this I was taken off due to sharp decrease in BP shortly after eating.
Anyway this is obviously mysterious and complicated. Would like a diagnosis merely to attack the issue. Interesting note is endocrinology department at Mayo declined the referral but upon re submission it appears internal medicine department is reviewing the info again. At this point it is what it is.....

Thanks for providing a bit more medical history and background, @krk. Your situation sounds a bit more complicated given the injury to your spine and the polythycemia. I am glad to hear that the Internal Medicine Department at Mayo is reviewing your information. It would be a good thing to be seen at Mayo.

I understand your interest in getting a diagnosis. It's important just to know the cause.

I look forward to hearing from you again. Will you post again with questions or updates?

Thanksgiving is in the books. Followed guidelines and kept ti to phone and videos. We decided to move the “feast” to noon, minimal in my case. Hour after it was what is now typical. Symptoms are still here, yesterday more pronounced as actually having a meal. As everyone on this stream notes it gets old real quick. Throat closed, flushed and very visible face turns red, neck sweat. Interesting that when a “meal” is consumed , as opposed to grazing throughout the day , the symptoms are quicker and more severe. So yesterday from 2 on basically miserable🥲. Symptoms are always like that in evening anyway. Funny that this reminds me of college when you knew your head would hurt after Friday night beers, but you do it anyway! Have to maintain weight and protein/calories to arrest weight loss.
I will be coming to Scottsdale February 1 to be seen by Dr Koch. Repeat my self but looking for cause is the goal if at all possible.

I have Graves’ disease and j has radiation as it was so overactive. Now anytime I eat anything green I feel a burning sensation in my feet, belly or chest and i feel it for hours. I cannot have anything with coconut if I eat certain nuts or anything with vanilla flavor I get severe dry mouth for days. Has anyone experienced that?

I also have a problem after eating, although it is somewhat different. My nose runs, especially after a large meal, and I can go through many tissues. This began after moving from Cleveland, Ohio to Silver Spring, MD in 1975. I have found that eating smaller portions and spacing things out more is helpful, such as waiting after dinner before eating a bowl of cut-up fruit and yogurt for dessert. I have a borderline case of diabetes that is well controlled without medication. A doctor once told me that he could prescribe something that could inhibit this reaction so that it wouldn't occur when I went out to dinner, but I never asked for the prescription. I am wondering whether seeing an endocrinologist might be helpful to you.

@evalvarez Welcome to Mayo Clinic Connect. You have been diagnosed with Graves Disease. You are looking for other people that have Graves Disease and that experience a burning sensation and severely dry mouth for days after eating anything green, coconut, certain nuts, and anything with vanilla flavor, as you do.

Below I have linked two previous discussions related to Graves Disease in the Autoimmune Diseases Group. Please feel free to scroll down and read the previous comments in both of these discussions.

- Auto Immune Diseases: Looking for young people with Graves Disease https://connect.mayoclinic.org/discussion/people-with-graves-disease-1/
- Autoimmune Diseases: Thyroid Graves Disease: Anyone else? https://connect.mayoclinic.org/discussion/thyroid-graves-disease/

May I ask if your symptoms are common for someone with Graves Disease and what your provider has said about these symptoms?

Hello @luftmensh1,

Yes, your idea of seeing an endocrinologist is a good one. Since it especially happens after large meals it could be that you need to eat smaller meals on a regular basis. Endocrinologists are brilliant doctors. They have to know all of the body systems and they have a way of putting puzzle pieces together when other doctors don't think they fit.

Will you post again and let me know how you are doing?