What safe hobbies can I do while having NTM/MAC?

Posted by cheb @cheb, Oct 22 4:53pm

I would like to find hobbies that are safe for me to do, since I have been diagnosed with non-tuberculin, mycobacteria avium complex. My biggest hobby prior to diagnosis was plants and avid gardening. I was told I should not be gardening, weeding, potting or re-potting plants. I also love to cook, but I was told I should wear a mask while cooking, due to the steam. This has been extremely hard and I have been very depressed and do not have a very good outlook for my future anymore.

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Profile picture for roebeau1 @roebeau1

I do agree that my gardening days are over and yours should be as well. Even repotting house plants is not a good idea since you may be throwing spores into the air in your home.

I can’t imagine cooking should be off the table. You’re not standing over a pot constantly. You must have some joys in your life and these things feed your soul and are so important.

Talk to your nephrologist about needing a mask while cooking. My bet is he or she will give you the okay to skip the mask.

When I go through the list of things we should avoid with this disease, (I have the same) we shouldn’t shower, bathe only, never use the spray on your kitchen faucet or any faucet, forget dusting, never vacation in Hawaii, etc., etc., you can become afraid to live.

Common sense has to come into play. Clean shower heads regularly as well as faucet sprayers, if you’re cleaning a closet or anything beyond light dusting, wear a mask, skip Hawaii since the soil there breeds MAC due to the lava crevices that form in the soil.

I personally do mosaics but not with grout. Instead I use Apoxy Sculpt with gloves, have 3 Hepas in my room and ventilation even though the product has no fumes. I avoid most glues. Most are considered dangerous for inhalation.

I hope others will contribute crafting ideas for you as well.

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@roebeau1 I never heard about the Hawaii caution. Makes sense, though. I have been doing hand-molded clay pottery while wearing an N95. Some say I shouldn't be, but my doctor said if I was going to do it, I was to wear a mask. I only do it once a week. I have some rooms that will need painted after insulation is installed. Will I be okay to do painting, if I wear a mask?

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Profile picture for cheb @cheb

@roebeau1 I never heard about the Hawaii caution. Makes sense, though. I have been doing hand-molded clay pottery while wearing an N95. Some say I shouldn't be, but my doctor said if I was going to do it, I was to wear a mask. I only do it once a week. I have some rooms that will need painted after insulation is installed. Will I be okay to do painting, if I wear a mask?

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@cheb & @roebeau1 I have lived with Bronchiectasis for over 8 years, Asthma for over 40 years, and allergies my entire life. A long time ago, I decided not to let these conditions (and several others not related to my lungs) dictate my life.

Common sense is very important, as is separating the true risks into categories of high, medium and low, then deciding how we want to live.

Remember, all of life is a matter of balancing what we want and need to do, and what we enjoy doing, against the risks of each activity. Even walking or driving to work, the grocery store, church and the library carry risks!

Dr Jennifer Honda, at the University of Texas at Tyler, who specializes in "Living with NTM" has some excellent videos on exactly this topic. Here is her most recent presentation, delivered at the National Jewish Health Patient Conference in September:


And here is my favorite about choosing how to live with NTM & Bronchiectasis:
https://www.youtube.com/watch
Back in 2018/2019, when I was struggling with Bronchiectasis, MAC and Pseudomonas, and hearing "No gardening" "No swimming pools" "No showers" "Boil all the water" and on and on, I was overwhelmed. Then I talked to my pulmonologist, ID doc and my primary, and they all said versions of the same thing - "This is a disease you will live with, not die from. Take reasonable precautions and go live your life." I took that to heart and have been doing it ever since. The ID doc told me it is safe to garden AND have house plants with precautions (outlined in a previous post.) NTM-ir.org agrees:
https://ntminfo.org/reducing-exposure/
I asked my pulmonologist about pottery/clay work because the room where I paint is immediately adjacent to an active pottery studio - she said to wear a mask if I am actively working with the potters (we collaborate sometimes) and wipe up settled dust with a damp cloth or paper towel to avoid inhaling it.

,It never occurred to me to worry about paining a room in my home. What specific risk do you think might be caused by painting a room?

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Profile picture for Sue, Volunteer Mentor @sueinmn

@cheb & @roebeau1 I have lived with Bronchiectasis for over 8 years, Asthma for over 40 years, and allergies my entire life. A long time ago, I decided not to let these conditions (and several others not related to my lungs) dictate my life.

Common sense is very important, as is separating the true risks into categories of high, medium and low, then deciding how we want to live.

Remember, all of life is a matter of balancing what we want and need to do, and what we enjoy doing, against the risks of each activity. Even walking or driving to work, the grocery store, church and the library carry risks!

Dr Jennifer Honda, at the University of Texas at Tyler, who specializes in "Living with NTM" has some excellent videos on exactly this topic. Here is her most recent presentation, delivered at the National Jewish Health Patient Conference in September:


And here is my favorite about choosing how to live with NTM & Bronchiectasis:
https://www.youtube.com/watch
Back in 2018/2019, when I was struggling with Bronchiectasis, MAC and Pseudomonas, and hearing "No gardening" "No swimming pools" "No showers" "Boil all the water" and on and on, I was overwhelmed. Then I talked to my pulmonologist, ID doc and my primary, and they all said versions of the same thing - "This is a disease you will live with, not die from. Take reasonable precautions and go live your life." I took that to heart and have been doing it ever since. The ID doc told me it is safe to garden AND have house plants with precautions (outlined in a previous post.) NTM-ir.org agrees:
https://ntminfo.org/reducing-exposure/
I asked my pulmonologist about pottery/clay work because the room where I paint is immediately adjacent to an active pottery studio - she said to wear a mask if I am actively working with the potters (we collaborate sometimes) and wipe up settled dust with a damp cloth or paper towel to avoid inhaling it.

,It never occurred to me to worry about paining a room in my home. What specific risk do you think might be caused by painting a room?

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Benjamin Moore has the low VOC paint. I would start there and just wear a mask. Sanding is not a great idea so hopefully you can avoid it.

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Profile picture for Sue, Volunteer Mentor @sueinmn

@cheb & @roebeau1 I have lived with Bronchiectasis for over 8 years, Asthma for over 40 years, and allergies my entire life. A long time ago, I decided not to let these conditions (and several others not related to my lungs) dictate my life.

Common sense is very important, as is separating the true risks into categories of high, medium and low, then deciding how we want to live.

Remember, all of life is a matter of balancing what we want and need to do, and what we enjoy doing, against the risks of each activity. Even walking or driving to work, the grocery store, church and the library carry risks!

Dr Jennifer Honda, at the University of Texas at Tyler, who specializes in "Living with NTM" has some excellent videos on exactly this topic. Here is her most recent presentation, delivered at the National Jewish Health Patient Conference in September:


And here is my favorite about choosing how to live with NTM & Bronchiectasis:
https://www.youtube.com/watch
Back in 2018/2019, when I was struggling with Bronchiectasis, MAC and Pseudomonas, and hearing "No gardening" "No swimming pools" "No showers" "Boil all the water" and on and on, I was overwhelmed. Then I talked to my pulmonologist, ID doc and my primary, and they all said versions of the same thing - "This is a disease you will live with, not die from. Take reasonable precautions and go live your life." I took that to heart and have been doing it ever since. The ID doc told me it is safe to garden AND have house plants with precautions (outlined in a previous post.) NTM-ir.org agrees:
https://ntminfo.org/reducing-exposure/
I asked my pulmonologist about pottery/clay work because the room where I paint is immediately adjacent to an active pottery studio - she said to wear a mask if I am actively working with the potters (we collaborate sometimes) and wipe up settled dust with a damp cloth or paper towel to avoid inhaling it.

,It never occurred to me to worry about paining a room in my home. What specific risk do you think might be caused by painting a room?

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And thank you for your favs! I will watch them for sure!

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Profile picture for cheb @cheb

@roebeau1 I never heard about the Hawaii caution. Makes sense, though. I have been doing hand-molded clay pottery while wearing an N95. Some say I shouldn't be, but my doctor said if I was going to do it, I was to wear a mask. I only do it once a week. I have some rooms that will need painted after insulation is installed. Will I be okay to do painting, if I wear a mask?

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I don't see the dangers in hand work with clay. Maybe a wheel has some risks of producing more air born particles but hand work should be fine.

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My ultimate favorite hobby is traveling. That's when I come alive. I'm grieving having to give it up. But what I realized was that since I'm not planning a trip or actually on a trip, I now have time to take classical guitar lessons!

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Profile picture for letsjustbreathe @letsjustbreathe

My ultimate favorite hobby is traveling. That's when I come alive. I'm grieving having to give it up. But what I realized was that since I'm not planning a trip or actually on a trip, I now have time to take classical guitar lessons!

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@letsjustbreathe What caused you to give up travelling?

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Profile picture for Sue, Volunteer Mentor @sueinmn

@letsjustbreathe What caused you to give up travelling?

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@sueinmn Hi Sue, for the past 15 months, I have been struggling daily with symptoms of what
I believe is Bronchiectasis. I was referred for a CT scan in February 2026 (via the NHS, I live in Scotland) and I'm still waiting. I was prescribed a steroid inhaler in February which I take at least twice a day, but I don't feel it makes much difference. My sinuses seem to be really affected too, and I constantly sound like I am loaded with the cold. I continuously cough up thick mucus throughout the day, every day. I have had no period of remission. Do you have any advice on how best to progress further assessment/diagnosis, as I am concerned it will worsen the longer it goes undiagnosed/untreated? Thanks in advance for your time and consideration.

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Profile picture for pfarren @pfarren

@sueinmn Hi Sue, for the past 15 months, I have been struggling daily with symptoms of what
I believe is Bronchiectasis. I was referred for a CT scan in February 2026 (via the NHS, I live in Scotland) and I'm still waiting. I was prescribed a steroid inhaler in February which I take at least twice a day, but I don't feel it makes much difference. My sinuses seem to be really affected too, and I constantly sound like I am loaded with the cold. I continuously cough up thick mucus throughout the day, every day. I have had no period of remission. Do you have any advice on how best to progress further assessment/diagnosis, as I am concerned it will worsen the longer it goes undiagnosed/untreated? Thanks in advance for your time and consideration.

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@pfarren Aside from a CT scan, which I understand can take a long time under your national health system, do you have access to a pulmonologist (you may call them respirologist?)

Here is a resource for people with Bronchiectasis in Scotland - perhaps you can get a suggestion for getting care there -
https://www.chss.org.uk/group/breathtakers-action-for-bronchiectasis/

REPLY
Profile picture for Sue, Volunteer Mentor @sueinmn

@cheb & @roebeau1 I have lived with Bronchiectasis for over 8 years, Asthma for over 40 years, and allergies my entire life. A long time ago, I decided not to let these conditions (and several others not related to my lungs) dictate my life.

Common sense is very important, as is separating the true risks into categories of high, medium and low, then deciding how we want to live.

Remember, all of life is a matter of balancing what we want and need to do, and what we enjoy doing, against the risks of each activity. Even walking or driving to work, the grocery store, church and the library carry risks!

Dr Jennifer Honda, at the University of Texas at Tyler, who specializes in "Living with NTM" has some excellent videos on exactly this topic. Here is her most recent presentation, delivered at the National Jewish Health Patient Conference in September:


And here is my favorite about choosing how to live with NTM & Bronchiectasis:
https://www.youtube.com/watch
Back in 2018/2019, when I was struggling with Bronchiectasis, MAC and Pseudomonas, and hearing "No gardening" "No swimming pools" "No showers" "Boil all the water" and on and on, I was overwhelmed. Then I talked to my pulmonologist, ID doc and my primary, and they all said versions of the same thing - "This is a disease you will live with, not die from. Take reasonable precautions and go live your life." I took that to heart and have been doing it ever since. The ID doc told me it is safe to garden AND have house plants with precautions (outlined in a previous post.) NTM-ir.org agrees:
https://ntminfo.org/reducing-exposure/
I asked my pulmonologist about pottery/clay work because the room where I paint is immediately adjacent to an active pottery studio - she said to wear a mask if I am actively working with the potters (we collaborate sometimes) and wipe up settled dust with a damp cloth or paper towel to avoid inhaling it.

,It never occurred to me to worry about paining a room in my home. What specific risk do you think might be caused by painting a room?

Jump to this post

@sueinmn I googled the painting and AI said to NOT do the painting myself. Definitely NO spackling or sanding. Said to have someone else do the work, have that person use zero or low VOC paint, maximize ventilation (even if I'm not the one painting), stay out of the house or the room that is being painted for at least 24-48 hrs, and run a HEPA air filter in the area being painted. Said the paint fumes, VOCs and airborne particulates can irritate compromised lungs and worsen existing bronchiectasis or NTM/MAC lung disease. There is low VOC paint I could buy, but it says to not do the painting, much less be in the area being painted.

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