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Off Prednisone but still feeling new type of pain
I've been off Prednisone for 6 months. (I was on Prednisone for 3.5 years). My blood inflammation markers have been normal for years and multiple Rheumatologists and doctors all said I no longer had PMR. So I went off steroids.
So now the question: Has anyone else gone off Prednisone but still plagued with mysterious aches and pains (muscles and joints - but not as severe or similar to PMR)? It's something else, I think.
I can get along okay during the day, but first thing in the morning I'm very stiff and it hurts to move. Also if I sit too long, then the same thing happens. Once I get moving it gets better quickly. Although throughout the day knees, hips and upper arms can occasionally hurt. I can't do things like I used to.
I've seen so many doctors who can't tell me what's wrong.
anyone else?
I don't want to go back on Prednisone and I don't want to resort to other drugs, but quality of life is definitely suffering. So wondering if maybe I should be taking some sort of medication (not Prednisone).
any suggestions?
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Thank you for your encouragement, and good luck with your new rheumatologist.
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1 ReactionHas anyone checked you for fibromyalgia? Those are symptoms of that.
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1 Reaction@janetlee2026 if your question is for me. Yes I had that checked. I went down every possible road. It was so frustrating that doctors had no real answers and I had to figure it all out myself. They all liked to say..well the prednisone was masking old age pains. I didn’t buy it. I knew this was not it because I didn’t have any resemblance of those “old age” pains 4 years ago.
Its a year later now and I am pain free. Focused currently on heavy strength training to regain my muscles.