Any one with Neuroendocrine tumors getting the shot once a month?

@hopeful33250 She was diagnosed in 2009 as a result of discovery during a colonoscopy because the doctor had enough tubing to go to the ileum. Two tumors were discovered. As a result she had a resection removing the iliocecal valve and her appendix. Later discovery on her liver (lesions) she had a microwave ablation which was problematic, later a liver debulking got all but two lesions. She was scheduled for octreotide but stepped away when she wasn't experiencing any symptoms from the NET (flushing, diahrea, etc,) She did visit Cancer Treatment Centers in Zion IL but no treatments were done there. She did try a holistic treatment with a Rife Light and has recently been receiving Lanreotide shots every 28 days. Lesions have been shrinking and Chromogranin has stayed down.

His main side effect is extreme fatigue. We talked about it with the oncologist when we were there for the PRRT treatment. Apparently it is expected and happens with many people on the 3rd round. When he feels really tired he has a weak feeling but that also seems to be happening with his heart issues. So it is hard to tell if that is from the treatment or the AFIB. He has also had a difficult time eating - more than usual. The oncologist suggested that he be sure to have 2 Protein drinks (30 gms) daily and try to eat as much as he can.

I have been getting the lanreotide shots for exactly a year now with success. I had one reaction. The very first one (bad abdominal pain). At 6 months MRI showed no growth in tumors on liver and in abdomen. I also have a very rare one on muscle of left eye which I had gamma radiation to with success. Praying my next MRI in November also showing shrinkage and/or no growth. Life continues.

@diane888: Lanreotide 28 day injections have been on my monthly schedule since 1st Oncology appt. (5 yrs ago). This treatment I was told controls the side-effects (constant diarrhea, etc) of NET as well as controlling tumors. Since my successful PRRT treatment this is the only cancer treatment I have taken.
I suggest you check the Lanreotide or Octreotide mfg guidelines on specific protocol of shot usage (specific rules are paramount to receiving the best treatment from this injection).
We all hate to question the nurse giving you the injection, but YOU NEED this medicine to reduce risk of tumor progression! Also each of these shots have a huge $ cost ($17K for my insurance).
I am grateful to receive this medicine each month; although I still dread the shots. :-). Be proactive! Be well & happy!

@dbamos1945 For the past 2 years, Ron has been having Cold Spray put on before the injection of Lanriotide. It makes a painful shot much easier.