Any one with Neuroendocrine tumors getting the shot once a month?
I have heard there is side effects to the once a month shot( unsure of the name) what has any one experienced?
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@sturns I think prrt will be a very good decision as it worked very well for me. It cut back the size of my tumors by about 20% and have been stable for 3 years now. The side affects of the cancer also cut back dramatically.
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6 Reactions@sturns
My husband finished PRRT and had very good results. It may be worth considering because if effective it would indeed address the tumors that may be contributing to your pain. Additionally, see if palliative care or pain management would consider fentanyl patches, they can provide consistent pain relief, and you might find starting at a lower dose than the hospice pain management you had been on.
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4 ReactionsMy wife gets Lanreotide every 28 days, she has not experienced any side effects except for swollen abdomen and bloating and belching which we believe are unrelated to the shot. Her tumors on her liver are shrinking and her marker in her blood tests has stayed down (chromogranin).
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4 ReactionsMy husband gets a Lanriotide injection every 28 days. He has minimal side effects -- mainly being more tired and needing to go to the bathroom more often during the week after the injection. However, he just had his 3rd PRRT and is having a few more side effects right now.
@babsmcn Hi, and thank you for that info. I am going to try the prrt, and fentanyl dosent work well with me but that new med. ,i think its new, but Ketamine at a low dose has been helping with the pain in my upper abs. but thank you again for the message. Anthony
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