Anyone wtih long covid, small fiber neuropathy and over age 60?

Hi what helps me is Exercise 6 days a week brings me back to normal

I would like to join in this chat if possible. I was treated at Mayo Clinic. I’m still havin residual effects after 3 years.
Alan Watson

I got sfn neuropathy from covid vac 4 years ago feet very bad most of the time interrupts sleep Desperate for a fix
When i had covid paxlovid took pain away for 2 weeks

i'm female, 80, and dealing with long covid and have mcas for almost 6 yrs. i also have autoimmune issues that i've had long before getting a mild case of covid in dec. 2020. i've been hard-core exerciser for 40 yrs. and rode my spin bike at home when i got covid as i only lost taste/smell. i take many supplements and my symptoms are insomnia even with several sleep meds; fatigue needing 2 naps a day in spite of strict sleep regimen; now have many food sensitivities tested by naturpath; terrible brain fog and every emotion has been heightened 10 times as before getting covid. i get watery eyes/flushing/tingling in feet if i eat something that triggers me; had to eliminate gluten/dairy/beef but can eat chicken; put electrolytes in water which i carry around all day. i can still exercise; don't push myself and pace around what i need to do; have cognitive issues and do puzzles and brain games; listen to meditation/buddha teachings...have dizziness and low blood pressure. for me, i've come to accept that this is as good as it's going to get...some moments i get overwhelmed but i can still do what i want to do at 80 and prob. healthier than most. haven't gotten an official diagnosis but there's soooo much information on youtube and internet. my hubby has some long covid symptoms but some are different; oh forgot to mention constipation; have had crohns/uc all my life and am in remission but constipation is new. long covid is the gift that keeps on giving and each day is different.

@trnrmom1 Have you tried N-acetylcysteine (NAC) and guanfacine? This source may provide information to assist your doctors in treating your brain fog. https://www.yalemedicine.org/news/how-to-manage-long-covid-brain-fog

And this medical report was just release on the drug BioVie: https://finance.yahoo.com/healthcare/articles/biovie-present-long-covid-parkinson-135000456.html

University of Alabama is also working on Long Covid brain fog: https://www.uab.edu/reporter/research-innovation/pilot-study-finds-promising-results-for-treatment-of-long-covid-with-brain-fog

@dmcmanus138 There is a huge amount of data for you to read in the Mayo group for Post Recovery for Long Covid. Grab a cup of coffee or tea and start your search based on your symptom(s). Perhaps there will be options for solutions you can discuss with your doctor.

I am also over 65 and have had long covid for over 6 years now. For me, extreme pacing helps but it is also quite limiting. I have extremely heightened senses so sound, smells, light and conversation can drain my energy quite quickly. I have had improvement of my fatigue and inflammation pain with low dose naltrexone. I also have two covid toes so get extreme bursts of nerve pain...gabapentin helps a little. I do have enough energy to walk first thing in the morning and sleep ok if I am careful not to eat anything the covid fairy made me allergic to. I get dehydration very easily to sip on water with electrolytes all day long. If I get run down and tired, I need to take salt supplementation. I am also supplementing with B1 under my docs direction...it does give me a bit more energy.

@pattig09 i take nac but not guanfacine and just read all the info you sent. thank you. always like to stay updated on this disease that still has no cure! for the other readers i also take h1 and h2 antihistamines for food reactions of watery eyes/flushing/tingling and now adding dao before dinner....have no expectations of ever getting better than where i am now but i'm better off than many many longhaulers.

75 years old and suffering along with you. I've also been taking H1 and H2 antihistamines. Was recently diagnosed with possible reactive depression and anxiety. Extreme fatigue, brain fog, pain, and PEM. Scheduled a psychiatric evaluation for next month. Now dealing with cellulitis and a torn rotator cuff with a chipped bone. Trying to see if I can get a therapist before then to help me deal with all these issues. Hard getting mental health coverage for therapy, but easy to get coverage for a psychiatrist that will probably prescibe medications!! ☹️ Sending a virtual hug because, unfortunately, I have nothing else to offer. 🩷 Hang in there.

I am 72 and dealing with extreme fatigue, poor sleep, tinnitus, severe constipation, occasional lightheadedness, fast heart rate, bladder urgency, feeling chilled, occasionally nausea, stuffy nose. My migraines got much worse and at first I had panic attacks in the middle of the night. All of those are new post-Covid except for migraine.
I think I tried almost all of the supplements and the antihistamines that I read about here and elsewhere. None helped. I am slightly better and I think it is because of all the wellness habits I started: red light therapy, guided imagery, gentle exercise, breath work to enhance vagus nerve, first morning light exposure for circadian rhythm, intermittent fasting, low carb eating, and drinking lots of water. My best sources of info have been podcasts by Gez Mendinger, Long Covid MD (Dr. Kahn), Make Visible, Huberman Lab and People's Pharmacy. One day at a time!