1. < Polymyalgia Rheumatica (PMR)
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Prednisone tapering is challenging. What does remission feel like?

Posted by jmcc @jmcc, Oct 18, 2021

Hi all what’s remission feel like? Does it only happen when I’m completely off prednisone or can remission occur while I’m tapering?

I’ve had PMR for a year and three months and I’ve been on prednisone for a year. I have been able to taper down to 4mg per day with some manageable pain and moodiness, but 2 days ago my head cleared and I felt like my happy self again. I’m still a little achy but really thrilled that I’m not cranky/spacey/frustrated.

Can I accelerate the taper? Any advice?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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John, Volunteer Mentor | @johnbishop | 8 hours ago
In reply to @dacota "Hi I've been on predisolone for 14 years 10 years on 5mgs which im still in..." + (show)
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Hi
I've been on predisolone for 14 years 10 years on 5mgs which im still in when I take the 5mgs my pain is really bad ive taken 2.5mgs and it eases off.I wish I knew why and if its a good idea to stop on 2.5.ive got oesteoarthritis.

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Welcome @dacota, I don't think you are alone being on prednisone for many years. You might find the video in the discussion started by @dadcue interesting if not helpful:
-- Biologic Medications-Video about how to decide what is right for you.
https://connect.mayoclinic.org/discussion/biologic-medications-video-about-how-to-decide-if-it-is-right-for-you/
Have you tried any alternative treatments instead of or with prednisone?

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dacota | @dacota | 56 minutes ago
In reply to @johnbishop "Welcome @dacota, I don't think you are alone being on prednisone for many years. You might..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Welcome @dacota, I don't think you are alone being on prednisone for many years. You might find the video in the discussion started by @dadcue interesting if not helpful:
-- Biologic Medications-Video about how to decide what is right for you.
https://connect.mayoclinic.org/discussion/biologic-medications-video-about-how-to-decide-if-it-is-right-for-you/
Have you tried any alternative treatments instead of or with prednisone?

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@johnbishop Hi I’m on tramadol for pain and paracetamol
I do wish my doctor would give me 1mg of steroid so I can try to cut down slowly I’ve asked but she said I had been on predisolone such along time at 5mgs she didn’t think it was a good idea.I think they are causing me to have more pain,I know I am right because I have had 2.5mgs off my partner every other day and felt much better,I know you should not try anybody else tablets but I must try and see if it’s the predisolone causing more pain or not and I know it is.

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dacota | @dacota | 50 minutes ago
In reply to @dave1234 "I too developed PMR 7 to 10 days after 2nd Moderna booster shot, July 2022 at..." + (show)
Profile picture for dave1234 @dave1234

I too developed PMR 7 to 10 days after 2nd Moderna booster shot, July 2022 at age 57. I am down to 5mg prednisone now 9/23. It took almost a month for the proper diagnoses. First sent to orthopedics. I read a similar store where someone else was also sent to orthopedics. I never even heard of PMR and everyone I talk too says to me, "PMR-what is that? I did get to 3 mg back in July but symptoms reappeared so now I back to 5mg and trying not to go up anymore. I never had issues with hips. calves, arms, neck, shoulder, hands. Started at 30mg. Hopeful. I really wished I never got the second booster. No one is admitting that the covid vaccines are causing issues! I have heard similar stories from others maybe not with PMR but other things. These forums are a godsend. Thanks to everyone. This has been hell dealing with. Ther is another mayo clinic link, "Can PMR be induced by vaccine."

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@dave1234 Hi yes I had a Covid jab last week and it made the pain I’ve got 10 times worse it was terrible I don’t know wether to have another one. I’m on predisolone 5mgs at the moment for arthritis.
@ Dakota

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