Looking for other people with Myasthenia Gravis

Posted by newtogmg75f @newtogmg75f, 15 hours ago

I have been following different autoimmune disease groups and have shared some and responses to others in this forum because some people with autoimmune disorders have similar issues and problems. I would like to connect with other people who have myasthenia gravis like I have. It seems that there would be more participants. I have gMG and I’m triple seronegative but would like to hear from y’all out there.
Thanks and best thoughts and wishes to all . Linda at newtomg75

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

newtogmg75f | @newtogmg75f | 15 hours ago

Addendum to the above it’s
newtomg75f … thanks

cynthiasatx | @cynthiasatx | 1 hour ago

In reply to @newtogmg75f "Addendum to the above it’s newtomg75f … thanks" + (show)

@newtogmg75f -- I have gMG. Was diagnosed in Jan 2020. Started another IV treatment on Sep 15, 2026, which I'm not to sure about at this point. Thankfully my gMG has only sent me to the hospital on one occasion. I joined this forum to get feedback from others who have this illness and noticed nothing until your comment. Welcome!

fbt217 | @fbt217 | 13 minutes ago

My ocular myasthenia gravis progressed to gMG last Fall. I was on IVIG for nine months. It worked very well to alleviate my symptoms, particularly the fatigue. However, it was damaging my kidneys. I started last week on Vyvgart. It’s too soon to say how it’s working.
It would be good to hear from people who have experience with Vyvgart.