PC spread to some lymph nodes; radiation, ADT. intermittent ADT

@ecurb

My testosterone recovered from 6 to 122 after 3 months with no Lupron, but it continued to fall for the next 9 months to 111. My urologist said I was hypogonadal and put me on TRT to raise my testosterone. I am also concerned by three studies that state that low testosterone reduces life expectancy by 40%.

@jime51 Thank you so much for the video. I think PCRI does such great work. They make the videos understandable for the lay person and I think, sometimes, doctors (or perhaps all of us) become entrenched in what has been done, historically, and that is the only procedure that is followed.

Warm regards

Glenda

@pesquallie Has your testosterone gone back up again? I think you are right to be concerned. Testosterone is important for cardio health, for sure. If the prostate cancer can be controlled, or put to sleep, or whatever, then, according to what I have seen on PCRI videos, it is beneficial to attempt to bring the level of testosterone back, whether with creams, or whatever. It isn't like throwing gas on the flame. Those thoughts have been proven to be outdated.

Regards

Glenda

@soli

Hi: Yes, cancer was found in the prostate and also in some lymph nodes. With the PSMA scans, the radiation was directed at appropriate sites. Also, the prostate was radiated.

Regards

Glenda

@gkgdawg
Usually with a 4+3 you only do six months of ADT. I can imagine they want to do two years because of the T3b You do have some real aggressive issues. It could be when you get to a year, year and a half, and you stay undetectable the whole time you might be able to stop taking the drugs and see if your PSA starts to rise.

@pesquallie memorial Sloan Kettering info- you and I can expect Bone loss, cardio events from low T. I m almost 78. Other on line info says I won’t return to normal TT as I m too old. So to counter this garbage: I do the following- lift weights 60 lbs. the most , arm rubber band stretches in the door, walk 3 miles/ week on treadmill. Leg lifts, leg band stretches 3x/ week. I drink green tea with mushroom capsules daily, take Leucine, Carnitine after exercises with weights. Get my heart rate up for 15 min-3x/ week. Use my Apple Watch to track that. I have a stent in the RCA. That was 2-1/2 years ago. Eat no red meats. Eat fish/ chicken a lot. You may be right about a shorter lifespan so I eat BEETS daily to promote collateral circulation in my ticker. We have to deal with what we’re dealt. This is how I deal with my situation. Good luck. Fatigue is my biggest issue til I get a higher test. Level I believe. That’s all I can tell ya thus far.

@soli
Hi Soli,

PSMA found 4 glands glowing , very little uptake but still positive. They were all in pelvic area except one that was in the groin and they insisted that it is most probably not positive since PC is rarely, if ever, there (for some reason ?). We had 2 consultations (one at UCSF and one at UCLA) and UCLA told us to treat groin also since it can not hurt and with aggressive cancer one just never knows what it can do or not do. So, we insisted on ALL glowing gland being treated. Both ROs suggested that the whole area should be treated with boost to the glands and preventative dose to the pelvic floor.

My husband also had PROSTOX done and it came back low for both types of RTs and indeed, so far no side effects present. Well, of course big credit should be extended to UCSF junior RO doctor that was exceptional in his expertise and care and also to my hubby who made sure that his bowels were "squeaky clean" lol and bladder extra full.

He had some mild night urgency in very last week of RT but it was resolved with AZO pumpkin and soy supplement. Now 4 weeks after RT he goes to pee only once during night time and that was his "normal" even before whole PC Odyssey started.

Wishing you all the best 🍀✨. : ))) Please always feel free to ask anything .

@surftohealth88
Thank you so much, @surftohealth88, for taking the time to share such a detailed response. I am truly happy that you were able to get both the consultations and treatment at some of the very best medical institutions.

Most of all, I am especially happy to hear that your husband received the treatment he needed and came through it without significant urinary or other adverse side effects. I know how important quality of life can be when making these difficult treatment decisions, and I am sure it was an important consideration for both of you.

I sincerely wish your husband continued excellent results, good health, and many healthy and happy years ahead for both of you.

I’ve done a lot of research and it seems there is an unhealthy link between the pharmaceutical companies’ profits and the doctors and clinics’ unending use of HDT. What I can’t find is a legitimate study of the efficacy and outcome of HDT long term use versus short term or intermittent use and life span. Does anyone else harbor doubts about this? My husband’s oncologist said he would be on HDT for three months then, if his numbers dropped, he’d have five radiation treatments and then monitor every 6 months. His numbers dropped from 13 to .027 but she now says he needs to be on HDT for at least a year. My husband hates the medication’s side effects and wants off it. He’ll take himself off it if he doesn’t see some hard data. He is 73 and says he’d rather have a few good years than be miserable all the time for longer.

@soli
You are very welcome Soli and thanks so much for those most wonderful wishes for us - your words really warmed my heart today 💖🤗