Occipital Neuralgia: What treatments work for you?

Posted by jmb73 @jmb73, Sep 11, 2019

I have been having headaches on one side of my head and have recently been diagnosed with occipital neuralgia. They recommend a nerve bloc but I wonder anyone else has this and how they handle it.. I don't want a nerve bloc. The headaches are usually mild but occasionally the pain wakes me up. They got worse after I had my Gamma surgery. Any ideas would be appreciated. Thank you.

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I have these weeks long headaches a few times a year…I was offered injections but do the exercises and rest my eyes more…the pain travels down to my neck, even into my back…Tylenol helps to manage it..osteopathic hands-on therapy helps very much.

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I have good luck with anti inflammatory diet including turmeric, i also went to a pt for neck massage. It helped alíviate some pain from being so tight.

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I had trigger point injections with steroid on both sides of occipital nerves 2 weeks ago. It sent me into a major flare. I'm waiting for things to settle down...PA at Pain Management said it could take 3 weeks. Anyone else have this kind of reaction? I'm hesitant to do any other injections....

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Profile picture for Rachel, Volunteer Mentor @rwinney

I was diagnosed with Occipital Neuralgia. Along with that came cervicogenic headache, spondylosis then later chronic migraine diagnosis. I was never totally convinced that ON was accurate but I did know the pain brought me to tears and I used to tell my husband there was evil living inside my head! Pressure inside and tenderness on the outside. I could not lay on a soft pillow and would have to sleep upright in my recliner with my head gently resting against ice until it was completely numb. I was desperate for help so I went for the greater and lesser occipital nerve block followed by radio frequency ablations. I received sufficient relief and continued for 2 years. I also had the same procedures on my neck C3-C7. In the end I began having less relief and more pain to convince me something else was going on or they just weren't working anymore. Turns out I was also diagnosed with Small Fiber Neuropathy shortly there after. Kind of a mixed bag regarding nerves and common areas of interest. Only you can decide if its the right procedure for you and I wish you all the best. Feel free to ask if you would like to know any more about the procedures.

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@rwinney I forgot all about a car accident years ago that messed up my neck (wore a Philadelphia Collar for months), & lost a few teeth on same side of my head that hurts. Gabapentin took the constant pain away. Still taking it 35 years later for nerve pain in my legs. Ugh - it causes brain fog .

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So sorry for your pain….the head/neck aches can be quite persistent….this condition is treatable, or at least manageable ….i did a combo of off-label script for amitriptyline 10mg ( low-dose ), focused exercises (easy) and osteopathic treatment…also, increased awareness about supporting my neck when doing my music editing…we can help ourselves more than we might think. Good luck to others who are dealing with this pesky condition .

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Profile picture for denway91 @denway91

I had trigger point injections with steroid on both sides of occipital nerves 2 weeks ago. It sent me into a major flare. I'm waiting for things to settle down...PA at Pain Management said it could take 3 weeks. Anyone else have this kind of reaction? I'm hesitant to do any other injections....

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@denway91 agree about injections.

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I suffer from occasional yet very severe headaches that follow the occipital nerve path on the right side and back of my head and at times neck. The anesthesiologist I had for other pain management quickly diagnosed this issue and produced that exact head ache just by touching a certain area. It seems that at certain times (no clue when) everything lines up and I become extremely susceptible to the point of even a slight touch or other seemingly trivial trigger will start that misery. At other times-no problems and I am grateful. I do know that narcotics are no help at all-only something like ketorolac, a strong nsaid will eventually reduce or even eliminate that debilitating pain. To me that indicates a physical (could be emotional causing the physical) tension on that nerve is the culprit, IDK. The cause appears to be elusive, in my case anyways, since I have not been able to get a clear cut diagnosis-any thoughts?

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Sounds exactly like my O.N. So frustrating, and the only thing that helps me is an ice pack on the back of my skull. I alternate three little frozen gel pads made for eyes, but they fit behind my ear and relieve the pain.

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Profile picture for pierwell @pierwell

Sounds exactly like my O.N. So frustrating, and the only thing that helps me is an ice pack on the back of my skull. I alternate three little frozen gel pads made for eyes, but they fit behind my ear and relieve the pain.

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@pierwell
Pain Mgt. Dr did RFA (Radio Frequency Ablation) on occipital nerves. Almost immediate relief 2 years ago.
Check it out.

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Glad it helped you. I’ve had two ablations but no success.

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