Please share your experience on hydroxychloroquine/Paquinol

Posted by annpeters @annpeters, Sep 23 8:28am

I was prescribed hydroxychloroquine while they try to figure out what’s happening in my system. I believe they’re thinking systemic sclerosis, but no clear answers at this point. Medication seems to have a paradoxical effect on me. Little bit frightened. Thank you so much for your responses.

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suev3sbcglobal | @suev3sbcglobal | Oct 2 7:23am

I have been on hydroxychloroquine since 2016. Then I had RA which is now changed to Sjogrens disease. I have not had any issues with the medication. I get my eyes checked yearly.

2brussels | @2brussels | Oct 2 9:55am

In reply to @jonijean "@2brussels I was diagnosed with CPPD, also called pseudogout and pseudo rheumatoid. I started plaquenil 6/5/2026..." + (show)

@jonijean Thanks for your reply! I as wondering whether my rheumy misdiagnosed me to start as she is CRNP and I wouldmuch prefer to be under the care of an MD.

jonijean | @jonijean | 6 days ago

Just FYI...My 1st 2 rheumatologists were M.D.'s and both missed it. I saw several osteo docs and all missed it.

rlchn | @rlchn | 6 days ago

In reply to @jonijean "@rlchn full benefits take months. Hydroxichloroquine is SLOW acting. If you continue you should talk to..." + (show)

@jonijean Yes, I do have eye checks once a year, so far no cataracts or glaucoma. Dry eyes are always a problem with RA, so far just uncomfortable, no serious effects. Thank you for your concern!

Becky, Volunteer Mentor | @becsbuddy | 6 days ago

In reply to @suev3sbcglobal "I have been on hydroxychloroquine since 2016. Then I had RA which is now changed to..." + (show)

@suev3sbcglobal Welcome to Mayo Clinic Connect! I’m glad you found Mayo Connect and even left a message. So, you started hydroxychloroquine when you were first diagnosed? I know that some members will really appreciate the message you left as hydroxychloroquine can be difficult for some people.
I have a question about your avatar (name). I can’t figure out if it means something or am I just making guesses.

shirleydm | @shirleydm | 4 days ago

Hello, I have been taking it for about 3 years for rheumatoid arthritis pain. I can’t speak about negative side effects at all. What I do know is that if I stop taking it, my pain returns. Good luck to you.

annpeters | @annpeters | 4 days ago

In reply to @shirleydm "Hello, I have been taking it for about 3 years for rheumatoid arthritis pain. I can’t..." + (show)

@shirleydm love hearing this! Thanks!

rlchn | @rlchn | 4 days ago

In reply to @becsbuddy "@suev3sbcglobal Welcome to Mayo Clinic Connect! I’m glad you found Mayo Connect and even left a..." + (show)

@becsbuddy Nothing tricky, just my name with an initial!

suev3sbcglobal | @suev3sbcglobal | 3 days ago

In reply to @becsbuddy "@suev3sbcglobal Welcome to Mayo Clinic Connect! I’m glad you found Mayo Connect and even left a..." + (show)

@becsbuddy it’s justmy name.

suev3sbcglobal | @suev3sbcglobal | 3 days ago

I’ve been on hydroxychloroquine for a number of years with no issues. I currently have Sjogrens and small lymphocytic lymphoma, a non-Hodgkin’s lymphoma. I have also had Hodgkins lymphoma. Has anyone had any problems with bruising and the bruising not clearing up? No one seems to know why I bruise so easily.

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