Has anyone with axonal sensorimotor polyneuropathy had a total knee re

Hello @sharonmarie2788, Welcome to Connect. I have small fiber peripheral neuropathy and have had my right knee replaced. I don't have pain with my neuropathy just numbness and some tingling but the knee replacement didn't make my neuropathy worse or any better. My Mayo surgeon had me focus on doing pre-surgery and post-surgery knee and leg exercises which I think really helped with my recovery process. There are many discussions on knee replacements if you want to scan through them while you wait for others to respond. Here's a search with links to the different discussions and member comments - https://connect.mayoclinic.org/search/discussions/.

You might also find the following discussion helpful:
-- Looking for someone who has axonal sensorimotor polyneuropathy
https://connect.mayoclinic.org/discussion/axonal-sensory-polyneuropathy-1/
I know it can be a little scary thinking about an upcoming knee replacement. Do you have any family or friends that can help you during the recovery process?

Thank you so much for your reply. Yes, I am fortunate that I have my husband to help me. My daughter and son both live about 2 hrs away and they will come help as well. Your experience that you shared gives me hope, so thank you. It is scary because I don't yet know what is causing it. I have my first appointment with a neurologist 6 days before my scheduled surgery. My primary care doctir ordered Vit B12, thiamine, folate, fasting blood sugar, A1C and thyroid tests which wete all normal. She said the neurologist will order more blood work and try to find out what is causing it and that sometimes no cause can be found. I did notify the surgeon's office of the new diagnosis. Hopefully he doesn't cancel the surgery as I really need it. He plans to do the right knee first and then the left in 4- 6 months. I am 64 yrs old and and now have limited mobility due to severe knee osteoarthritis and this new diagnosis with numbness in bith feet and burning in calves with some tingling in hands and forearms complicates everything. Thanks again for your supportive response!

@sharonmarie2788 I wish you well, Sharon. I have 2 replacement knees. If they care well for you in the hospital and you follow up with a good rehab programme, you should be 'ok'. But we are all different. I developed poly neuropathy slowly, after the 2nd knee replacement, which was about 3 years ago. The PN is now bad, wheelchair. I can only think having lymphodoema, especially in that leg might have something to do with it. This probably doesnt help you. Keep on, courage!

Thank you for your kind response. I am so sorry that the polyneuropathy has gotten so bad for you. That is my fear if a cause can't be found to stop the progression. I see the neurologist later today and then having my right knee replacement next week. Praying for you!

@sharonmarie2788
Very best. Hug.