My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Posted by Lori, Volunteer Mentor @loribmt, Feb 14, 2021

The past two years have been a storied journey of facing Acute Myeloid Leukemia and a subsequent bone marrow transplant. Being in a high risk category for relapse for AML, a transplant was necessary. Simply put, it would provide a completely new immune system to fend off any remaining AML cells lurking about in my body, after my original factory installed version had become defective in recognizing them. My husband and I shared a collective sigh of relief with the news that my latest bone marrow biopsy, at 19 months post transplant, showed no AML or the mutation which caused it. My new immune system is working!
While celebrating the results with my husband and a pizza, it occurred to me how far I’ve come and how life has changed in the past two years since the onset of AML and the transplant. There have been some challenging transitions but none insurmountable. Of course, life as a genetically modified organism, with two sets of DNA and a new blood type, can have its turf wars with a few GvHD issues, adaptations to medications and such. But I’m incredibly happy to have a second chance with this generous gift of life from an anonymous donor, and through the medical expertise of my amazing BMT-team at Mayo-Rochester. Hopefully I can meet my donor someday to thank him in person. I did send him a card right after the transplant giving him my “undying” gratitude!
We’ve all been given a gift of life. I’d love to hear your story. Lori

What diagnosis brought you to a BMT?

How has it impacted your life and that of your caregiver?

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

Profile picture for janetlen @janetlen

@anitasharma I am sorry to hear this outcome. Praying for your husband, you, and your family. I just heard yesterday that my cancer is coming back after BMT. I find out Oct 15 whether the DLI is available to me.

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@janetlen
Praying to God ,It will surely help you out.
Could you also share after how many years of BMT it relapsed ?

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Chimerism changed at the 6 and 9 months check. Sometime during that period would be my guess.

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Profile picture for janetlen @janetlen

@anitasharma I am sorry to hear this outcome. Praying for your husband, you, and your family. I just heard yesterday that my cancer is coming back after BMT. I find out Oct 15 whether the DLI is available to me.

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@janetlen Fingers crossed if it is a darn a false count. Keep us updated.

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Profile picture for janetlen @janetlen

Chimerism changed at the 6 and 9 months check. Sometime during that period would be my guess.

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@janetlen
I am 2 years 4 mo. out. The chimerism has not been checked in a long time. Also, my hematology oncologist is not concerned that my donor's blood was 0 and I am A+ still. He shrugged when i brought this up. Not concerned. You remind me we must ask till we get the answer to our question. Some days i completely forget i had a transplant.

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Profile picture for jrhino860 @jrhino860

@edb1123
How old were you when you had theBMY

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Hi @jrhino860 While you’re waiting for a reply from @edb1123 as to her age at time of her bone marrow transplant, I just wanted to pop into the conversation to welcome you to Connect!
Is a bone marrow transplant on the radar for you or a family member?

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