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Anyone else on Daraxonrasib (RMC-6236)?
Pancreatic Cancer | Last Active: Oct 23 6:29am | Replies (163)Comment receiving replies
Hey everyone.
So...... How are you doing on the daraxonrasib?
My husband has been on it for 3 weeks now and has zero energy. Although he didnt have much prior to starting either. He had some vomiting/diarrhea on/off the first few days. Now a little rash on his nose area. Otherwise seems ok. We get his cancer labs done next week and PET done end of October. He doesnt talk much at all and just wants to sit with his eyes closed all day. Rarely wants to go out and do anything at all. I harass him to eat or drink protein drinks because he has lost over 100lbs. He also has blood clots in both legs and his feet are swollen. So very depressing.
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My husband was on Rasonque for 2 weeks. He has liver and lung metastasis. He got a little diarrhea for a few days which was controlled with immodium and got a rash on his face, back and chest which is not causing any discomfort as he uses the prescribed medication and creams. He has debilitating fatigue and they found that his ammonia is high so that was causing the extreme fatigue so they have him on medications to extract the ammonia from his system. So hopefully, along with increasing his white blood cell count and hemoglobin level his energy should improve. Hopefully, he will be able restart the Rasonque, even if it is at a reduced dose, because in just the 2 weeks his CEA was already decreasing. CA19-9 was not a marker for him as his was always 0.6. The relentless fight against this disease continues.