Am I the only one that’s in denial?
Is there anyone else in this group that refuses to start treatment? I’m 62 years old with a T score of -3.8 in hips and spine. Even though I’ve just suffered a painful compression fracture, the alternative (Meds) still scares me to death. I feel like I’m too young to start treatments that will cause rapid bone loss the minute you stop medication. I realize you go on to a second medication to lock in the gains, but then what?? At 62 years old, the treatment sounds more terrifying than the disease itself. I’m doing all the natural things in the meantime and awaiting a new DEXA scan. I did have a slight improvement on my last one, this was mainly from collagen peptides, calcium, D3 with K2 and walking on treadmill. I know I should have added light weightlifting to the regimen, but hindsight is 2020. When I am fully healed, I plan to go that route as well. I’ve read all the pros and cons to every single medication on the market and the cons, for me, seem to outweigh the benefits. Am I alone in this thought process?
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect

@pamstarr Thanks, I used to go to Holiday Spa back in the day:)
@boneoptimist exactly! I was so hoping that something new and improved would come out, before I had to choose between what’s available today. Tymlos definitely sounds like the gold standard, but it’s the years following that scares me.
I didn’t have much luck with AlgaeCal or Bone Up (lol, I know!) Currently on supplements from Healthy Bones Co.. Feel like it’s all just a bandaid though
@boneoptimist, did you have any severe side effects from any of the bone medications? I went to my doctor, had a DEXA scan, was diagnosed with osteoporosis, and was prescribed Fosamax. Side effects do not occur in all women, but I get concerned about the pain and the possible dental problems. I had cancer, and my gums/teeth have problems. I do not want to be in pain or cause myself any medical problems unless there is a positive outcome with few side effects. From what I read, there is not always a good outcome, and some women have to try different medications to find one that works without pain or with very few side effects. I hope everything works out well for you.
@jenben59 , Hello! So if you can, please watch the video about drug sequencing. In summary, drugs should go like this: bone builder (anabolic- like Forteo or Tymlos) first, then a builder combined with a bone conserver (like Evenity), then last is the bone saver like Fosamax. The bone savers actually can block the bone builders for quite a while (months, years), so see if your Dr can get you on a builder first. Here's the video:
I've been taking Tymlos for 11 months (daily injection in the lower abdomen). The first injection made me flu-like sick, in bed for 2 days, slight fever, and vomiting. I called the Dr, she told me to start out at a lower dose. I started at one click (1/8 of a full dose) for like 5 days, before going to 2 clicks for a few days, etc. When I got to 6 clicks, my heart raced for a few hours, Dr had my calcium checked, it was too high. She had me take a week off, retest calcium, then I started at one click again.
After 4 months I basically stayed at 5 clicks. When I tried 6 clicks, my heart rate would rise to 165 BPM in my SLEEP, and that was 8-9 hours after injection. Dr said that I might just have to stay at 5 clicks. I still get occasional headaches/head pressure from it. I've learned to drink a lot of water before and after injection. And I pee a lot because of it.
In spite of the low dose, my bone density in spine has improved 5-7% every 6 months, so the drug is worth the hassle. I do a LOT of exercise (weight lifting and treadmill and pickleball) and nutrition/supplements too. I have friends just doing injections and taking calcium, and they are not getting the same results.
After Tymlos (2 years total), another drug is the standard protocol.
Good luck in your journey, and I'm happy to answer any questions! The posters here have a lot of collective experiences, so you will learn a lot!
-
Like -
Helpful -
Hug
3 Reactions@summera1 , Hello and great job on the physical exercise! I really think the exercise/Tymlos combination is very necessary. Like you, I want to get the most improvement while on this drug because the other drugs scare me.
You questioned t-scores in going from OP to osteopenia with just exercise. I'm a data/numbers person and I track lots of things , so here are the numbers. I started at -4.1 in my worst area (L-4).
Over 19 months of just weights, pickleball, nutrition, protein I got that to -2.7. Other areas did make it into osteopenia. Unfortunately my femoral neck was unchanging at -2.7, and Dr didn't think the progress was fast enough, so she said time for meds. On Tymlos, I do a dexa every 6 months, so i know the progress is steady at 5-7% improvement in BMD every 6 months. The -2.7 went to -2.2 and -1.8 while on Tymlos (6 month increments). I added leg slams/stomps to my routine in the last 6 months (that I kinda made up myself, out of desperation), but they finally got the needle to move on femoral neck density, improving 6.46% BMD, and t-score from -2.7 to -2.4 on one side, -2.7 to -2.5 on the other.
I agree with your effort to increase the weight you use. I do the same. I'm always increasing either reps or weight. I think you are really going to see improvement on your next dexa. I assume you have the nutrition component covered as well?
I recognize your hard work, and I wish you the best!!
-
Like -
Helpful -
Hug
4 Reactions@memuno1stborn thank you for your candid response! I’m glad you overcame being freaked out about self injections! You never know when that skill will come in handy! I did Forteo years ago and then had to dust those skill off to do injections of Lovenox!
@memuno1stborn I totally agree. I used Forteo for 24 months in 2016 and have just completed a second course of 24 months now. May I ask what you are using for maintenance drug after Tymos? I can no longer measure the density in my spine due to a series of fractures before my first treatments with Forteo. I have not fractured since. There has been improvement in my hip density, and as Forteo mainly boosts the spine, I can only pray and assume even better scores there. I will be 69 in December. non smoker and no alcohol. Active healthy life style, but do have Lukopenia so crappy hemoglobin and nutriphils.
Hi , I’m 57 yrs old was diagnosed with osteoporosis last year and also don’t want to use prescription medication for all the side effects. I listen to every podcast in you tube to educate myself about medication side effects and what else to do instead of prescription medication. Last night I found this great and very informative podcast call the “fragile truth about bone health and Dexa . Please everyone listen to it . You will change your mind about medication. Also ask your Dr about your Frax Score which will tell you the possibility of a hip fracture in the 10 yrs of you life . Very important.
-
Like -
Helpful -
Hug
1 ReactionThe interview is interesting. It is true in the UK that osteoporosis patients have to see a rheumatologist in order to get script for Forteo, but in the US primary care physicians can and do prescribe these meds. I'm not sure that is altogether positive, though.
Romosozumab is limited to one year because it usually becomes antiresorptive at one year starting the switchover at 6 months.
https://news.weill.cornell.edu/people/dr-lisa-mosconi
https://integritywellnessmd.com/does-hormone-therapy-increase-the-risk-of-blood-clots-or-stroke/
While the interview doesn't change my mind about the usefulness of medication with osteoporosis. I think we should look at all the information (with a little suspicion) before making a decision about these medications.
-
Like -
Helpful -
Hug
1 Reaction