1. < Osteoporosis & Bone Health
Profile picture for indenial

Am I the only one that’s in denial?

Posted by indenial @indenial, Sep 18 10:26am

Is there anyone else in this group that refuses to start treatment? I’m 62 years old with a T score of -3.8 in hips and spine. Even though I’ve just suffered a painful compression fracture, the alternative (Meds) still scares me to death. I feel like I’m too young to start treatments that will cause rapid bone loss the minute you stop medication. I realize you go on to a second medication to lock in the gains, but then what?? At 62 years old, the treatment sounds more terrifying than the disease itself. I’m doing all the natural things in the meantime and awaiting a new DEXA scan. I did have a slight improvement on my last one, this was mainly from collagen peptides, calcium, D3 with K2 and walking on treadmill. I know I should have added light weightlifting to the regimen, but hindsight is 2020. When I am fully healed, I plan to go that route as well. I’ve read all the pros and cons to every single medication on the market and the cons, for me, seem to outweigh the benefits. Am I alone in this thought process?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for summera1
summera1 | @summera1 | Sep 29 7:57am
In reply to @stress101 "@indenial that was my question to my endocrinologist. I’m having problems tolerating Tymlos but let’s say..." + (show)
Profile picture for stress101 @stress101

@indenial that was my question to my endocrinologist. I’m having problems tolerating Tymlos but let’s say I could take it, what is next? I have heart disease so that eliminates a couple. I have recurring uti so that eliminates Prolia, I wasn’t able to tolerate biphosomates so Reclast afterwards would be problematic. So, your question is one needing to be addressed. Some of the risks aren’t worth it to me. I have read there’s a trial with very promising results of a stem cell therapy. We definitely need better choices.

Jump to this post

@stress101 I have trouble with Tymlos, but am having success by taking a half dose, 4 clicks and slowly adding. I am now up to six clicks.

REPLY
1 reply
Profile picture for njx58
njx58 | @njx58 | Sep 29 2:46pm
In reply to @summera1 "@stress101 I have trouble with Tymlos, but am having success by taking a half dose, 4..." + (show)
Profile picture for summera1 @summera1

@stress101 I have trouble with Tymlos, but am having success by taking a half dose, 4 clicks and slowly adding. I am now up to six clicks.

Jump to this post

@summera1 Excellent. Many people use that strategy. Some people simply cannot handle the full dose. You're still getting a benefit.

REPLY
1 reply
Profile picture for lightlifts
lightlifts | @lightlifts | Sep 30 6:57am
In reply to @njx58 "@summera1 Excellent. Many people use that strategy. Some people simply cannot handle the full dose. You're..." + (show)
Profile picture for njx58 @njx58

@summera1 Excellent. Many people use that strategy. Some people simply cannot handle the full dose. You're still getting a benefit.

Jump to this post

@njx58 I’ve been on Tymlos 13 months. The 1st 6 months could only get up to 4 clicks. Since then I’ve been on 7 clicks.
My spine increased 13.5% and my hips 9%. I also take supplements and do resistance training 2X a week, walk and bike and do water aerobics.
Prior to taking Tymlos I still did those things and they didn’t stop the osteoporosis.
Currently problem is not liking what to do after Tymlos. Rheumatologist is adamant that Reclast is for me and HRT won’t help enough.
Good luck not an easy journey .

REPLY
Profile picture for codythedog
codythedog | @codythedog | Sep 30 10:19am
In reply to @maryandnans "@helmit I agree with you I am almost 72, dx with OP when I was 69...." + (show)
Profile picture for maryandnana @maryandnans

@helmit I agree with you I am almost 72, dx with OP when I was 69. I also changed my diet, added more supplements, started strength, impact and balance training. Finally I found a Dr that would prescribe HRT. All of this has put me back in osteopenia.

Jump to this post

@maryandnans
Very curious, I am doing the same but finding it impossible to get the HRT (still working on it) how long did it take to drop down to the osteopenia levels?
Thank you for your time

REPLY
Profile picture for maryandnana
maryandnana | @maryandnans | Oct 1 7:32am

I found a GYNO that is part of the menopause society. She was not taking new patients, but her partner is. And she gave me HRT. As far as changing my bone density it took about 2 years of concentrated lifting, diet, and HRT was started about a year and a half ago.

REPLY
Profile picture for loh
loh | @loh | Oct 1 9:13am

You are absolutely not alone. I'm 64 and feel the same way. I tried Tymlos, toughed out the first two weeks of horrible headaches, but after 3 months I started to get terrible leg cramps, and overall felt like I was coming down with something all the time so stopped the Tymlos and almost instantly felt better. So I went the denial route, I'm taking collagen, Vitamin D, upped my treadmill usage and use light weights. I just had a dexascan (2 years after the last one). I was dreading the results because it would force me out of denial. I haven't seen the numbers yet, but the technician said my back stayed the same (okay, well at least it's not worst) and my hips actually improved. Yay!

REPLY
Please sign in or register to post a reply.