What can cause ANA titre of 1:2560?

Posted by carpe_bean @carpe_bean, Sep 18, 2017

Hi everyone,
I got really sick back in January and have been struggling to get a diagnosis or treatment. I've read quite a few chat threads on this site for some time but have never posted. I have a question no doctor has been able to answer. Maybe someone in this community might have some insight! In May a doctor tested my anti-nuclear antibodies (ANAs). The titre was 1:2560. I know ANAs can be elevated by autoimmune diseases, cancer, and viral/bacterial infections, among other things. So far, doctors haven't been able to figure out what's wrong, despite a host of weird symptoms and irregular tests. My question is: How likely is such a high ANA to be associated with an autoimmune disease? I've repeatedly read that the titres caused by viruses and bacterial infections are usually "mild", presumably <640. Is that true? Doctors have ruled out cancer, they don't believe it's a bacterial infection, but a virus is always a possibility. Can chronic viruses like Epstein-Barr cause such a high ANA? Has anyone else here personally experienced that? I've seen a handful of doctors, but most have been dismissive and unhelpful. I'm really frustrated. Hopefully someone here can provide some clarification. Thanks!

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@johnbishop

Hello @carpe_bean, I'm sorry you are not able to get to the bottom of what's causing your health problem. You certainly have been through a lot. I'm not sure why the doctors do not take you seriously when you give them a list of the symptoms you are having. Are you currently taking any specific medications or drugs? and/or have been taking them for a long time?

Also, it might be worthwhile just to run some of your symptoms through the Mayo Clinic Symptom Checker website just to see if it may confirm anything for you. Here is the site if you want to try it: http://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075

John

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@carpe_bean, You made me smile with your "classic women" comment. On the other hand men probably fall into their own classic man mode by not reading between the words. My answer to those type questions from my wife are "yes, dear" or "how high dear" (do you want me to jump!).

I did my second go around of adding organic turmeric powder (1 tsp) to my coffee this morning and remembered why I stopped after the last time I tried it. Doesn't taste too bad when you first mix it in but you best drink the coffee fast. It doesn't mix/dissolve in the coffee so after awhile it settles and you really get the taste. I had also tried it in my breakfast smoothie when I first started and it made it taste funny (not too bad though) so I may go back to using it in the smoothie. There are a lot of links that describe the benefits - here's one that I found that does a good job: https://www.organicfacts.net/health-benefits/herbs-and-spices/turmeric.html

John

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@johnbishop

Hello @carpe_bean, I'm sorry you are not able to get to the bottom of what's causing your health problem. You certainly have been through a lot. I'm not sure why the doctors do not take you seriously when you give them a list of the symptoms you are having. Are you currently taking any specific medications or drugs? and/or have been taking them for a long time?

Also, it might be worthwhile just to run some of your symptoms through the Mayo Clinic Symptom Checker website just to see if it may confirm anything for you. Here is the site if you want to try it: http://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075

John

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@johnbishop Haha, John! You really made me laugh! I know my husband could relate to "how high dear." That's probably a good sign though. I'm guessing you've been married for a long time? Not many other relationships are as challenging or as rewarding!

I forgot to ask you that, about how the turmeric tastes. Bummer to hear it's not so good. I have an insanely good recipe too for "Power Puddin'", which is just a mixture of chia seeds, matcha powder, and almond milk. Then I pile on lots of blueberries and nectarine. Maybe I could hide the taste of the turmeric in there.

Thanks for the link! I'll check it out. Then I just have to find turmeric here in Germany...

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@johnbishop

Hello @carpe_bean, I'm sorry you are not able to get to the bottom of what's causing your health problem. You certainly have been through a lot. I'm not sure why the doctors do not take you seriously when you give them a list of the symptoms you are having. Are you currently taking any specific medications or drugs? and/or have been taking them for a long time?

Also, it might be worthwhile just to run some of your symptoms through the Mayo Clinic Symptom Checker website just to see if it may confirm anything for you. Here is the site if you want to try it: http://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075

John

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@carpe_bean Do you have any Asian grocery stores or Health Food stores nearby? I would think you can get the turmeric powder there. My wife and I have been married going on 53 years. Fortunate for me she has excellent health but one never knows. I heard her and her twin sister talking about her husband and him being sometimes cranky. She was telling him about his Dad being in a nursing home while his Mom was still living on her own at home. She told him - "see, that's what happens to crabby old men. They get to go to the nursing home."

Good luck with finding where to get some turmeric.

John

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@carpe_bean it is interesting that your Rheumatologist ruled out autoimmune rheumatic disease, and I hope you can find some assistance on the Autoimmune Hep forum. I had nothing to add to the discussion above, but am so glad you posted your question, and that members and the Mentors have added some very helpful resources for us all; I have learned a lot. I hope you feel better soon, and can receive appropriate and timely treatment.

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@johnbishop

Hello @carpe_bean, I'm sorry you are not able to get to the bottom of what's causing your health problem. You certainly have been through a lot. I'm not sure why the doctors do not take you seriously when you give them a list of the symptoms you are having. Are you currently taking any specific medications or drugs? and/or have been taking them for a long time?

Also, it might be worthwhile just to run some of your symptoms through the Mayo Clinic Symptom Checker website just to see if it may confirm anything for you. Here is the site if you want to try it: http://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075

John

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@carpe=bean dear carpe bean, this is peach. many supermarkets now carry tumeric such as Publix in florida. and i suppose other markets in many states, it is now a very popular spice used (as you know) for many things. good luck.

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@johnbishop

Hello @carpe_bean, I'm sorry you are not able to get to the bottom of what's causing your health problem. You certainly have been through a lot. I'm not sure why the doctors do not take you seriously when you give them a list of the symptoms you are having. Are you currently taking any specific medications or drugs? and/or have been taking them for a long time?

Also, it might be worthwhile just to run some of your symptoms through the Mayo Clinic Symptom Checker website just to see if it may confirm anything for you. Here is the site if you want to try it: http://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075

John

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@johnbishop Ooo, so that's where to find it. Thanks!

Wow, congratulations on 53 years! That's incredible.

My husband and I celebrate 20 years next month. Well, 20 years of being together since we didn't get married until 9 years ago. He always says that all our years together feel like five minutes.....underwater. SUCH a comedian. Your wife sounds like a hoot. A sense of humor is definitely one of the keys to a happy marriage.

I'll let you know when I find turmeric. 🙂

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@johnbishop

Hello @carpe_bean, I'm sorry you are not able to get to the bottom of what's causing your health problem. You certainly have been through a lot. I'm not sure why the doctors do not take you seriously when you give them a list of the symptoms you are having. Are you currently taking any specific medications or drugs? and/or have been taking them for a long time?

Also, it might be worthwhile just to run some of your symptoms through the Mayo Clinic Symptom Checker website just to see if it may confirm anything for you. Here is the site if you want to try it: http://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075

John

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Hi @peach414144, I guess I've been living under a rock but I had no idea turmeric is such a popular spice. I'm not sure I've ever even had it, or at least I couldn't tell you what it tastes or looks like. We live in Germany, so sometimes it takes some serious hunting to find stuff, but we'll enlist friends to help. Thanks!

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@taterjoy I thought so too, but the tests for the most common antibodies for autoimmune diseases were all negative, which is what made me think maybe it really is viral. Or maybe even bacterial....? She didn't give us any lab results at my last appt, but they just finally came in the mail. For the first time, my Complement C3c is low (but C4 is fine) and "Bacteria" is 3x elevated. She didn't mention either of those at the appt, so I have no idea what they mean.

After 8 months of this, I think I've accepted I'm on my own to get better here. It's a relief to have this forum for support. I'm glad to hear you've found the forum helpful, and thank you, I hope I feel like myself again soon, too!

By the way, I like your handle. My husband and I are from Idaho originally - the potato state. We have a travel blog called "Two Small Potatoes." Anything "tater" reminds us of home. <3

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Hello All. So I searched around on Mayo Clinic Connect for a forum on Autoimmune Hepatitis and didn't find one. Not sure if this is the best place to post this, but if there's anyone who happens to see this and has been diagnosed with AIH, I'd really appreciate it if you'd be willing to share how you were diagnosed. Thanks!

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@carpe_bean

Hello All. So I searched around on Mayo Clinic Connect for a forum on Autoimmune Hepatitis and didn't find one. Not sure if this is the best place to post this, but if there's anyone who happens to see this and has been diagnosed with AIH, I'd really appreciate it if you'd be willing to share how you were diagnosed. Thanks!

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