Benign paroxysmal positional vertigo: What has helped you?

Hello, I realize this post was a few years ago however it was so informative and I thank you for that! I experienced Sudden sensory hearing loss 6 weeks ago. ( I knew exactly what it was as I experienced it 9 years ago, first and only time until now.) I was treated immediately with steroid injection from a Ent in Florida while I was on vacation there, it was reversed. When this happened recently I knew I needed help, I now live in the state of Delaware and called the ENT’s office who refused to see me for 3 months on their schedule… I went to the emergency room at the hospital who agreed it was SSHL, and my discharge papers said I was to see Dr. E. (the local and only ENT here) within 1 to 2 days. They still refused to see me. I persisted and finally was seen by the audiologist 2 weeks later and tested. She swore to me it was just declining hearing due to age,I’m 68 years young and extremely active. I disagreed with her and persisted on. Another week later I finally saw the Doctor who gave me a injection of steroid. No improvement. He told me that my SSHL is idiopathic, however in my chart termed me as having meniere’s disease!!! I never had and still do not have menieres. How was your diagnosis confirmed for meniers? So frustrated I was label with a diagnosis I do not have. Can you enlighten me? Thank you for all you can offer.

It's my understanding that Meniere's Disease has a nice, handy number code that docs can use to get paid by insurance, so they use it, whether or not it fits. FWIW, ordinary ENTs don't have the training required to begin to differentiate between the various hard-to-diagnose inner ear disorders.
I was diagnosed by the doc who set up the first real vestibular lab, at Holladay Park Hospital in Portland, OR. He worked with NASA to test astronauts before and after space flights, was especially interested in John Glenn, who was the oldest person to live in a weightless environment for any length of time. He designed the machines used to test for various vestibular diseases/problems. By the time I saw him in 1985 or 86, the lab had been moved to what is now Legacy Good Samaritan in NW Portland; it's still there. After I went bilateral May 24, 2019, 6:45 p.m., I went back to the lab to see if there was anything new in VRT. I learned that age has made the nerves in my lower legs less functional, so I need to work harder every day on VRT. Although the exercises I had been doing since the mid-80s were still correct and useful, I've had to add some new ones, spend more time on VRT ever since.
Like many post-menopausal women, the trigger for bad days for me is low hormone levels. A year after I went bilateral, a local OB/Gyn agreed to prescribe higher amounts of hormones for a brief period, and I regained quite a bit of hearing, quit having V&V crises, and was able to resume the active life I live. However, she feared that I might have a stroke, so has kept cutting back the meds until I have no idea where I am in space, in spite of daily VRT. I now live in a constant state of panic, not ever being confident of exactly where I am or where anything else is. I'm back to reaching for things on my desk with my fingers spread out so that I'll bump into the pen or whatever eventually. I suffer lots of cuts and burns in the kitchen. My days of being able to drive are limited, which means I'll be in a terrible place...but the doc is so afraid of a possible stroke that she flat refuses to increase the hormones temporarily so that I can live normally. (A couple of weeks of quadrupled amounts followed by a gradual tapering down to what I'm currently taking would do the trick, but no dice with this doc.)

Hello I have BPPV, it's been about 17 years now. I just had my most violent spinning in a very long time, fell and hit my head on the floor. I've been seen by the dr and have an appt to see a vestibular therapist. Meanwhile I've been doing the exercises and I just can't seem to clear it. So I go around dizzy all day. I have grabbers to keep me from bending down, I do what I can. It's exhausting. I'm 69 years old and sick of this!

Information on vertigo? Going to vacation in two weeks. Only had spinning of room twice when I did a leg exercise. What should I do?

I have been there too. PT fixed me, immediately only one visit. Do call the PT you want to go to and ask who or where you can get the treatment. Some therapist do it, many do.
Google “ear rocks”

@620915122k, I moved your question to this existing discussion:
– Benign paroxysmal positional vertigo: What has helped you? https://connect.mayoclinic.org/discussion/benign-paroxysmal-positional-vertigo-1/

Click the link to read many helpful replies on managing veritgo.

I agree with @su8 that a consult with a physiotherapist might be a good place to start and hopefully relatively easy to get an appointment before you travel.

Wondering if I should be seen? Only happened 2 times. No more!

I was treated for BPPV for several months in weekly sessions by a physiotherapist certified in vestibular disorders. Most sessions included the Epley maneuver, always positive. Finally the therapist released me to continue at home with neck and eye exercises as well as the Epley maneuver as needed. That was about a month ago. I'm still getting room-spinning results, the most recent being last night. Was diagnosed with neuropathy two years ago, and treatment for that (infra-red light, vibration olate, elliptical) hasn't helped either. I'm stuck on where to go and what to do.

@julius1742 I was treated by PT for vertigo although never had the Eply maneuver done so don't know if it would help or not. My vertigo is caused by superior semicircular canal dehiscence from a tooth infection that spread. It was an upper back tooth with a previous crown. Never really hurt.

This may be unrelated but symptoms occurring with turning the head can be associated with RVAS Rotational Vertibral Artery Syndrome or called Vertebrobasar circulation.The arteries at the back of the head. It is recommended that any testing be “dynamic” where the head is turned and not just facing forward.
I am interested in anyone familiar with this. Thanks