1. < MAC & Bronchiectasis
Profile picture for djwork1

NTM - abscessus

Posted by djwork1 @djwork1, Nov 1, 2025

I've been diagnosed with NMT abscessus. Out of 7 drugs, the only one it is susceptible to is Amykacin. However, according to an NIH study, it doesn't appear that amykacin will cure the abscessus.
Has anybody in this group achieved a cure for abscessus?
What drugs were you on? Single or combination drug cocktail?
For how long?
Anybody taken amykacin? It sounds like a very hard drug to tolerate and the manufacturer says not to take it for more than 10 days. How do you manage for 1-2 years? Thank you, Dian

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Profile picture for gbooth54
gbooth54 | @gbooth54 | Sep 16 5:15pm
In reply to @susies215 "I have mycobacterium abscessus with absecessus sub species. Do you know what sub species you have..." + (show)
Profile picture for susies215 @susies215

I have mycobacterium abscessus with absecessus sub species. Do you know what sub species you have there are three of them and some of them other than the one I have are easier to treat.
I have been on IV Amikacin 3 times a week since May so 6 months so far. Dr will keep me on it unless I have change in my monthly hearing tests. I don’t really notice any side effects from this. I am also on two oral drugs.Nuzyra and Sirturo. I have minimal side effects with these three drugs. My doctor trained at National Jewish and this hospital is the gold standard for treating these infections. He offered to let me come off of the IV drug if I agreed to a third oral drug called clofazamine which I have refused to go on since day one due to the side effects. It can turn your skin any color from yellow orange tannish brown gray black.

Jump to this post

@susies215 I took clofazimine for 6 months to treat mycobacterium intracellulare. I am fair skinned and got compliments for my “tan”. For me, the color was not as bad as the doctors said it would be.

REPLY
Please sign in or register to post a reply.