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Idiopathic intracranial hypertension
Brain & Nervous System | Last Active: Nov 25, 2021 | Replies (29)Comment receiving replies
Hi, @keza71. I add my welcome to @oldkarl's.
I'd like to also invite @aprillelain to join this discussion. She recently joined Connect and talks about being diagnosed with Idiopathic Intracranial Hypertension, previously known as Pseudo Tumor Cerebri.
Keza, you may also be interested in this discussion
- Empty Sella Syndrome https://connect.mayoclinic.org/discussion/empty-sella-syndrome/
You sure have been to more than your fair share of doctors. Who is following your care now?
Replies to "Hi, @keza71. I add my welcome to @oldkarl's. I'd like to also invite @aprillelain to join..."
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Hi @colleenyoung thank you. At the moment I am being looked after by a doctor at the hospital in the Medical team. Where I live we don't have Neurologists here. So my doctor has been talking with the neurological team in the closest town to me. Since my lumbar puncture on Friday I am still in so much pain. My head feels like it's going to split open, I have limited movement with my neck due to the pain in my head and when I walk the pain in my head gets extremely bad. I can deal with alot of pain but this is getting beyond a joke. Nobody here seems to know what to do...