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← Return to MDS diagnosis with DDX41 Germline and Somatic
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MDS diagnosis with DDX41 Germline and Somatic
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (50)Comment receiving replies
I had an unrelated hospital stay for several days. Apparently, I came down with a very toxic type of food poisoning called Shiga Toxin. Needs to run it's course, no antibiotics, just IV fluids because it can damage your kidneys. Needless to say my CBC numbers have taken a hit, but my hematologist isn't worried since it's because of an illness, and says they will bounce back to my usual numbers in a couple of months. WBC at 1.5, Platelets at 58, and Hemoglobins at 8.
Discharged from hospital, went back to hematologist 2-weeks later, numbers back up: WBC at 2.3, Platelets at 83 and Hemoglobins at 13
However, intestinal issues might linger for months, leaving me somewhat housebound due to sudden episodes. Has anyone ever had to deal with anything like this?
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Hi @asarnesejr! I just wanted to check in with you to see if you’re feeling better. Earlier this month you wrote about your stay in the hosptial with an intestinal bug! From news reports, you weren’t alone in your misery! Seems to be the summer for intestinal issues!
Not sure if you saw my earlier reply but I gave you a few tips on improving gut health! Here’s the link for you:
https://connect.mayoclinic.org/comment/1669854/
I hope you’re doing much better and back to feeling normal! Sending a hug!
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Wow, @asarnesejr! What the heck did you eat? I’m so sorry to hear you’ve been so ill with this bug or whatever it was! This has sure been the summer for intestinal issues with our foods! Yikes!
I’ve not had gut issues related to your particular intestinal bug, but I have had C.Diff, which is its own kind of hell. Anytime we have a disruption down there, it takes a toll on the gut biome. Restoring our intestines to good health is a slow and steady process.
What helped me was eating a good, non-fat, plain Greek yogurt daily. You can add a little honey, jam or fruit to make it palatable. But avoid sweetened yogurt. To much sugar makes the gut worse. I would eat about a half cup first thing in the morning. And the last thing at night.
One note that I will make. Is to AVOID taking over the counter probiotics. That can make an imbalance of too many of one type! Get your probiotics from foods. It’s more diverse. Also to avoid Kefir. (It’s too strong for right now for a weak gut…stick with yogurt).
I’m going to post a website for you with advice of what to eat and what to avoid right now! It is meant for C-Diff patients. However, it applies to anyone trying to restore their gut health! https://www.verywellhealth.com/c-diff-diet-4773546
These tips really helped get my intestines back to a predictable and healthy state again. I still eat yogurt, fresh raw, not canned, saurkraut or Kimchi daily. Being homebound because of bathroom issues is miserable. A little tip…if you haven’t done so, grab a pack of Depends. They help with any unexpected events. 😅
I hope you’re able to get back to normal soon! Let me know how you are feeling, ok?
Podcast from Mayo regarding dos and don’t for Gut health.
https://mcpress.mayoclinic.org/healthygut/dos-and-donts-for-keeping-your-microbiome-healthy/