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Can MDS be hereditary?
Approximately 30 years ago, my husband's sister was suddenly diagnosed with a "blood disease" and lived less than 2 weeks after being diagnosed. She had returned from an Indian Reservation outside of Phoenix, Arizona, and upon her return was hospitalized with "acute" flu symptoms. While sitting next to her in the hospital, she was re-diagnosed with cancer and went code blue in the elevator on the way to the cancer ward. She was kept in a coma state and died within a few days. We were able to talk with one doctor shortly before she died who referred to her problem as a blood disease.
Question: My husband was recently diagnosed with MDS and we are wondering if that can be related through hereditary issues.
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Glad you are doing well . Do you have to take any medicine now?
@katgob Did you take Lenalidomide or anything else before the transplant?
@jamie14
Jaime,
At City of Hope there is a standard practice of a chemo drug infused for 5 days before the transplant. The one you wrote looks to be used for Multiple Myeloma.
I googled my treatment and it was conditioning and called Fludarabine. It is reading my body for the 1 dose of heavy hitting Melphalan.
My treatment was based on the 5q deletion and the TP53 mutation.
Today after 2 years, i take Acyclovir. Lenalidomide is mentioned as a possible treatment. Looks like the treatments is based on your statistics. What will lead to cure.
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1 Reaction@katgob You mentioned that you have 5q deletion, and you’re taking Acyclovir. Is the Acyclovir intended to treat your MDS 5q deletion? If so, how does Acyclovir impact your hemoglobin?