Parsonage turner syndrome *

I feel for anyone going through this pain. This is the only time I have ever entered any kind of forum, because it is a lonely feeling. I did not have any luck with the Anti depressants. The only way to deal with the pai was to either use a hot patch preferably a hot water bottle or put an ice pack on the area of pain which as we all know can vary from the neck to you fingers. I spent to weeks in late March in Miami Beach having come down with Parsonage Turner in October having had A shgoulder operation for frozen should in February 2017. While in Miami, I did 3 intense session of accupunture followed by cupping. About a week later the paid began to go and within 10 days it was basically gone and I went from six to 8 pills a day to none. I soon started physio and have not had a bad day since May 1. The muscle wastage is still there and the strength is about 70%. I have started Pilates which is really good for it.
I do live in fear of a relapse but am just happy not to be in so much pain, which is why I am reaching out to you.

I feel for anyone going through this pain. This is the only time I have ever entered any kind of forum, because it is a lonely feeling. I did not have any luck with the Anti depressants. The only way to deal with the pai was to either use a hot patch preferably a hot water bottle or put an ice pack on the area of pain which as we all know can vary from the neck to you fingers. I spent to weeks in late March in Miami Beach having come down with Parsonage Turner in October having had A shgoulder operation for frozen should in February 2017. While in Miami, I did 3 intense session of accupunture followed by cupping. About a week later the paid began to go and within 10 days it was basically gone and I went from six to 8 pills a day to none. I soon started physio and have not had a bad day since May 1. The muscle wastage is still there and the strength is about 70%. I have started Pilates which is really good for it.
I do live in fear of a relapse but am just happy not to be in so much pain, which is why I am reaching out to you.

I'm a 57 year old female with PTS. My story starts in my early 20's when I started having episodes of extreme nerve pain with resulting nerve damage and winging of my scapulas. I had 3 or 4 episodes during my 20s which I attributed to overuse of my shoulders while playing volleyball. When I woke up in early April 2018 with that screaming arm pain I knew it was the same thing I had previously experienced... but I was wrong. This time the pain came down through my elbow into my hand. Eventually my hand (middle finger, index and thumb) became numb. Moving my arm out away from my body, below my waist or above my head would cause strong electric shock sensations up my hand clear up to my elbow. I had cervical spine xrays taken which showed several bad discs... so I waited for 6 1/2 weeks for a spinal injection that was supposed to solve my pain. That doctor told me I need to see a neurosurgeon and that he felt I needed a cspine fusion. So another appointment to see that doctor... luckily this doctor knew about PTS and suggested that although my MRI showed issues, those issues did not explain my symptoms. By this time my hand pain was still intolerable, with my index finger having become rigid. I went to see a hand doctor who says I have sever tendinitis due to extended period of swelling in my hand. Steroid injection and now PT to try and recover ROM in my hand. If that doesn't work I will need a tendon release procedure. Of course this is my right hand (dominant hand). Even if this fixes my tendinitis I will be left with numbness in hand. Still taking full dose of Gabapentin on a daily basis and hand pain goes off the chart if I don't take on time Here's my suggestion to help anyone else with hand pain: compression gloves! Found them at the beginning of July and can't be without them now!!

Knowing I have PTS answers alot of questions for me about why I've had these reoccurring events in my life. There are a couple more events I didn't share here. Over the years I was told I had frozen shoulder, shoulder problems, cspine issues, carpel tunnel etc. It's only now that I realize there may be one common thread between all these issues - PTS!!

I'm a 57 year old female with PTS. My story starts in my early 20's when I started having episodes of extreme nerve pain with resulting nerve damage and winging of my scapulas. I had 3 or 4 episodes during my 20s which I attributed to overuse of my shoulders while playing volleyball. When I woke up in early April 2018 with that screaming arm pain I knew it was the same thing I had previously experienced... but I was wrong. This time the pain came down through my elbow into my hand. Eventually my hand (middle finger, index and thumb) became numb. Moving my arm out away from my body, below my waist or above my head would cause strong electric shock sensations up my hand clear up to my elbow. I had cervical spine xrays taken which showed several bad discs... so I waited for 6 1/2 weeks for a spinal injection that was supposed to solve my pain. That doctor told me I need to see a neurosurgeon and that he felt I needed a cspine fusion. So another appointment to see that doctor... luckily this doctor knew about PTS and suggested that although my MRI showed issues, those issues did not explain my symptoms. By this time my hand pain was still intolerable, with my index finger having become rigid. I went to see a hand doctor who says I have sever tendinitis due to extended period of swelling in my hand. Steroid injection and now PT to try and recover ROM in my hand. If that doesn't work I will need a tendon release procedure. Of course this is my right hand (dominant hand). Even if this fixes my tendinitis I will be left with numbness in hand. Still taking full dose of Gabapentin on a daily basis and hand pain goes off the chart if I don't take on time Here's my suggestion to help anyone else with hand pain: compression gloves! Found them at the beginning of July and can't be without them now!!

Knowing I have PTS answers alot of questions for me about why I've had these reoccurring events in my life. There are a couple more events I didn't share here. Over the years I was told I had frozen shoulder, shoulder problems, cspine issues, carpel tunnel etc. It's only now that I realize there may be one common thread between all these issues - PTS!!

I'm a 57 year old female with PTS. My story starts in my early 20's when I started having episodes of extreme nerve pain with resulting nerve damage and winging of my scapulas. I had 3 or 4 episodes during my 20s which I attributed to overuse of my shoulders while playing volleyball. When I woke up in early April 2018 with that screaming arm pain I knew it was the same thing I had previously experienced... but I was wrong. This time the pain came down through my elbow into my hand. Eventually my hand (middle finger, index and thumb) became numb. Moving my arm out away from my body, below my waist or above my head would cause strong electric shock sensations up my hand clear up to my elbow. I had cervical spine xrays taken which showed several bad discs... so I waited for 6 1/2 weeks for a spinal injection that was supposed to solve my pain. That doctor told me I need to see a neurosurgeon and that he felt I needed a cspine fusion. So another appointment to see that doctor... luckily this doctor knew about PTS and suggested that although my MRI showed issues, those issues did not explain my symptoms. By this time my hand pain was still intolerable, with my index finger having become rigid. I went to see a hand doctor who says I have sever tendinitis due to extended period of swelling in my hand. Steroid injection and now PT to try and recover ROM in my hand. If that doesn't work I will need a tendon release procedure. Of course this is my right hand (dominant hand). Even if this fixes my tendinitis I will be left with numbness in hand. Still taking full dose of Gabapentin on a daily basis and hand pain goes off the chart if I don't take on time Here's my suggestion to help anyone else with hand pain: compression gloves! Found them at the beginning of July and can't be without them now!!

Knowing I have PTS answers alot of questions for me about why I've had these reoccurring events in my life. There are a couple more events I didn't share here. Over the years I was told I had frozen shoulder, shoulder problems, cspine issues, carpel tunnel etc. It's only now that I realize there may be one common thread between all these issues - PTS!!

I'm a 57 year old female with PTS. My story starts in my early 20's when I started having episodes of extreme nerve pain with resulting nerve damage and winging of my scapulas. I had 3 or 4 episodes during my 20s which I attributed to overuse of my shoulders while playing volleyball. When I woke up in early April 2018 with that screaming arm pain I knew it was the same thing I had previously experienced... but I was wrong. This time the pain came down through my elbow into my hand. Eventually my hand (middle finger, index and thumb) became numb. Moving my arm out away from my body, below my waist or above my head would cause strong electric shock sensations up my hand clear up to my elbow. I had cervical spine xrays taken which showed several bad discs... so I waited for 6 1/2 weeks for a spinal injection that was supposed to solve my pain. That doctor told me I need to see a neurosurgeon and that he felt I needed a cspine fusion. So another appointment to see that doctor... luckily this doctor knew about PTS and suggested that although my MRI showed issues, those issues did not explain my symptoms. By this time my hand pain was still intolerable, with my index finger having become rigid. I went to see a hand doctor who says I have sever tendinitis due to extended period of swelling in my hand. Steroid injection and now PT to try and recover ROM in my hand. If that doesn't work I will need a tendon release procedure. Of course this is my right hand (dominant hand). Even if this fixes my tendinitis I will be left with numbness in hand. Still taking full dose of Gabapentin on a daily basis and hand pain goes off the chart if I don't take on time Here's my suggestion to help anyone else with hand pain: compression gloves! Found them at the beginning of July and can't be without them now!!

Knowing I have PTS answers alot of questions for me about why I've had these reoccurring events in my life. There are a couple more events I didn't share here. Over the years I was told I had frozen shoulder, shoulder problems, cspine issues, carpel tunnel etc. It's only now that I realize there may be one common thread between all these issues - PTS!!

I feel for anyone going through this pain. This is the only time I have ever entered any kind of forum, because it is a lonely feeling. I did not have any luck with the Anti depressants. The only way to deal with the pai was to either use a hot patch preferably a hot water bottle or put an ice pack on the area of pain which as we all know can vary from the neck to you fingers. I spent to weeks in late March in Miami Beach having come down with Parsonage Turner in October having had A shgoulder operation for frozen should in February 2017. While in Miami, I did 3 intense session of accupunture followed by cupping. About a week later the paid began to go and within 10 days it was basically gone and I went from six to 8 pills a day to none. I soon started physio and have not had a bad day since May 1. The muscle wastage is still there and the strength is about 70%. I have started Pilates which is really good for it.
I do live in fear of a relapse but am just happy not to be in so much pain, which is why I am reaching out to you.

After a year and a half of thinking my husband had brachial plexus syndrome; he was diagnosed with sweat gland carcinoma in May. Make sure your doctor's check for everything & anything.....do not get focused on just one thing.

He is now undergoing radiation and chemotherapy treatments at Moffitt Cancer Center in Tampa, FL. What a great facility and we are pleased with his progress so far.

I pray each and everyday for all that are affected and touched by cancer and other devastating diseases. All we can say is NEGU - Never Ever Give Up!!