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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@patrick17

Hello @jjspokane61, I do have limited range of motion with my right arm. Weakness, also. I can’t raise it above my shoulder. My thumb doesn’t bend at all and my index finger only bends a little with great effort. My middle finger is about 90%.
My orthopedic surgeon was so alarmed at the deterioration of my hand and arm he said that I needed surgery right away. I guess he never considered PTS. I wish I had been referred to a neurologist first. However, even my first neurologist didn’t consider PTS.

I have had EMG tests performed by three different doctors. My first neurologist, who was highly recommended, literally had me jumping off the table. After he jolted me one final time with the worst jolt of all, he said, “Let’s stop here.” He said that I was overly sensitive to the test. My fault, I guess. A month later I had another more thorough EMG test by another neurologist and I barely had any discomfort at all. It definitely makes a difference how skilled the doctor is who performs the test.

I’m going to try acupuncture and cupping as suggested by one writer. Sooner or later I will find something that helps. I just can’t go on with this pain. It is very wearing. I’m glad your pain is controlled by the gabapentin.

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Replies to "Hello @jjspokane61, I do have limited range of motion with my right arm. Weakness, also. I..."

Did you end up having hand surgery? When I told my neurologist that the hand dr wanted to do a tendon release he just nodded his head NO... I have been going for hand therapy to try and regain movement in index finger. Very painful process but I have seen some improvement. I did get my 2nd nerve conduction study done today - and it came back positive for nerve damage. Dr says that means I definitely have brachial neuropathy (PTS). Said I needed to be patient and it would get better with time...