Just wanted to say thanks!

Posted by blue717 @blue717, Sep 2 2:27pm

I'm finished with radiation; now we wait to see if it destroyed it or if anything else is going on. Hoping for the best. Cancer runs strong in my family; in fact, I have a cousin Zoom chat, and last time we were all chatting about their cancers and how long they deal with it. We decided it's a very odd conversation. I'm so lucky mine was caught early. I am so grateful to this group, as they were my first point of contact after reading the report online that I had cancer. The people, the conversations, and the fact that they knew exactly how I was feeling were so helpful in keeping me grounded. No way am I leaving this group; help and support are always needed, no matter what side of the fence you are on,

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Hi @blue717
Congratulations on finishing radiation…. Sending good thoughts that indeed it destroyed it !
Huge hugs 🤗 Daisy

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Thanks for sharing @blue717, I'm so glad that you are sticking with us! You are able to help others through your own experiences.
Stay vigilant with your screenings and follow ups. I meet with some other friends that all have cancer, and we do indeed have some interesting and comical conversations. Sending virtual hugs.

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Prayers for total success for you. I too am new to this journey. Had segment resection of left upper lobe in January. Clear margins and clear lymph nodes. But solid histology and VPI. So was recommended I do 4 rounds of chemo. Carboplatin and Permexed. Followed by a year of Keytruda. Completed 5 rounds so far. Not too bad fatigue and not much appetite but managing. Praying it works. Have two ground glass opacity nodules in opposite lung they are monitoring via CT Scan. Praying for no changes there as we continue to monitor via CT Scans. Pretty anxious about that if I am being honest. It was determined stage 1 b due to solid histology and VPI.
I am so glad you found this is site helpful. As I am new to it. I must say it does help to know I am not alone. That others have had successful outcomes gives me hope.

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Profile picture for Lisa, Volunteer Mentor @lls8000

Thanks for sharing @blue717, I'm so glad that you are sticking with us! You are able to help others through your own experiences.
Stay vigilant with your screenings and follow ups. I meet with some other friends that all have cancer, and we do indeed have some interesting and comical conversations. Sending virtual hugs.

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@lls8000 I will gladly share my story, thoughts and comfort. Just paying it forward.

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Profile picture for liabo @liabo

Prayers for total success for you. I too am new to this journey. Had segment resection of left upper lobe in January. Clear margins and clear lymph nodes. But solid histology and VPI. So was recommended I do 4 rounds of chemo. Carboplatin and Permexed. Followed by a year of Keytruda. Completed 5 rounds so far. Not too bad fatigue and not much appetite but managing. Praying it works. Have two ground glass opacity nodules in opposite lung they are monitoring via CT Scan. Praying for no changes there as we continue to monitor via CT Scans. Pretty anxious about that if I am being honest. It was determined stage 1 b due to solid histology and VPI.
I am so glad you found this is site helpful. As I am new to it. I must say it does help to know I am not alone. That others have had successful outcomes gives me hope.

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Welcome @liabo, You have also endured a lot in the past year! You can give yourself some credit for coming this far, and it's great to hear that you are managing side effects too. Once we have cancer, any changes in our bodies can be concerning, and we've all felt that level of anxiety go up. Keeping an eye on those other nodules is smart but know that they may be nothing of concern too. I try not to worry until I know for sure that there is reason for the worry. Easier said than done in some situations. 🙂
What type of lung cancer were you diagnosed with? Non-small cell? How often are you having Keytruda infusions?

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Profile picture for Lisa, Volunteer Mentor @lls8000

Welcome @liabo, You have also endured a lot in the past year! You can give yourself some credit for coming this far, and it's great to hear that you are managing side effects too. Once we have cancer, any changes in our bodies can be concerning, and we've all felt that level of anxiety go up. Keeping an eye on those other nodules is smart but know that they may be nothing of concern too. I try not to worry until I know for sure that there is reason for the worry. Easier said than done in some situations. 🙂
What type of lung cancer were you diagnosed with? Non-small cell? How often are you having Keytruda infusions?

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@lls8000 Adenocarcinoma with KRAS G12C mutation VPI and solid histology. Margins and lymph nodes clear. Ground glass opacity of two nodules on opposite lung after surgery. Unknown status of those. One 9 mm upper right lung and pneumonia 8 mm lower same right lung. Doing Keytruda every three weeks. Had to change Dr from one I loved due to his retirement to one that she seems rather bothered to taken me on which has been frustrating and hurtful. Saying none of the side effects are known side effects. Even though the Keytruda literature at Government sites clearly states they are known. Too bad she has no empathy for her patients.

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@lls8000 Oops not pneumonia on the other 8mm Typo my apologies.

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Profile picture for liabo @liabo

@lls8000 Adenocarcinoma with KRAS G12C mutation VPI and solid histology. Margins and lymph nodes clear. Ground glass opacity of two nodules on opposite lung after surgery. Unknown status of those. One 9 mm upper right lung and pneumonia 8 mm lower same right lung. Doing Keytruda every three weeks. Had to change Dr from one I loved due to his retirement to one that she seems rather bothered to taken me on which has been frustrating and hurtful. Saying none of the side effects are known side effects. Even though the Keytruda literature at Government sites clearly states they are known. Too bad she has no empathy for her patients.

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@liabo, Hopefully the new oncologist settles in and gets better at listening to your concerns/side effects. I would think most of them would be familiar with Keytruda as it's used across more than lung cancer. Keep speaking up, maybe bring the medication literature with you. You deserve to feel heard. If it doesn't improve, you may want to request a different provider, if that's possible. I tend to give them a chance, hopefully you've caught her on a bad day.

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