Several 6mm nodules found in both upper lobes...

@californiazebra. Hi Zebra! Wow. You absolutely know your stuff. I am beyond scared right now as I had a low dose ct scan of the chest and found 3 nodules, 5mm solid, 4mm solid and a 2mm solid. All on the right lung. I am freaking out more because they are in the upper lobe, in which I read is dangerous and usually where lung cancer starts. I am freaking out. Hope to have a friend in you and get to talk to you. Thank you Zebra!

@californiazebra. Hi Zebra! Wow. You absolutely know your stuff. I am beyond scared right now as I had a low dose ct scan of the chest and found 3 nodules, 5mm solid, 4mm solid and a 2mm solid. All on the right lung. I am freaking out more because they are in the upper lobe, in which I read is dangerous and usually where lung cancer starts. I am freaking out. Hope to have a friend in you and get to talk to you. Thank you Zebra!

Welcome @joe88, First take a deep breath. Try to focus on what you know to be true. I know our minds like to go to the worst case scenario, but not all nodules are cancer. I have lung cancer but have also had a fungal nodule. IF this is cancer, it's great that you had your screening completed, so you can act on the results. Focus on one day at a time,
What's next? Do you have an appointment set up with a pulmonologist?

Hi @leah4122 I'm sure you're worried especially since your dad had lung cancer at an early age. I'm sure there are lots of different things they can be. Almost 20 years ago, I had a CT for chronic bronchitis and 50+ nodules were found scattered across both lungs (notice I'm still here enjoying life). 20 various specialists all guessed wrong for the next 12 years, everything from metastatic cancer to something left behind from a viral illness and many other guesses.

They could finally do a needle biospy on the largest tumor in 2020 as they were slowly growing. They turned out to be neuroendocrine lung cancer (typical carcinoids) which is a rare slow growing lung cancer and the reason I had so many nodules is because I have an even rarer neuroendocrine lung condition called DIPNECH -- only 300 documented cases to date, but they believe it is underdiagnosed. Most specialists haven't even heard of it including lung specialists. I had a chronic cough, shortness of breath, etc. for 30 years straight that was misdiagnosed as GERD, asthma, bronchitis, etc. Steroids, antibiotics and inhalers never helped. By the way, my brother died at 48 from non-small cell lung cancer (never smoked a day in his life) and that is not related to my type of cancer. So what you have may not be related to your dad's cancer.

I've been taking octreotide injections for 4 years now that has been life changing in taking away that chronic cough. It also slows tumor growth. Don't let your fear take over, be sure to ask the doctors to consider lung NETs and DIPNECH as possibilities and definitely have that follow-up scan in 6 months. There is plenty of hope that the specialists will figure this out and it will be treatable or even just an ongoing watch and wait situation. If your local doctors can't figure it out, try Mayo or your nearest university hospital. I hope this message brings you a little peace. Prayers for you, Zebra

@californiazebra hi Zebra! I am sorry to hear about your brother. I am shocked as I heard that non small lung cancer is treatable now and not a death sentence as it once was in the past. Do you have any more information about his situation? I know you said he never smoked either, wow.

@joe88
My brother was diagnosed in 2003 and passed in 2005 at 48 so they may have better treatment now. It was stage 4 when diagnosed as he never had any lung symptoms. His first symptoms were unrelenting back and pelvic pain that started at the gym from where the cancer had spread. It took a year to diagnose him as he was treated for what was assumed to be a back injury. Once diagnosed, he had surgeries on the metastatic portion (no treatment on lungs), radiation and 2 straight years of chemo until he passed. Since he was so young, fit, healthy and a non-smoker he never had any chest xrays or screening CTs or even ever went to the doctor in years prior which could have caught it early. Lots of various cancers and at young ages in my family so likely genetics at play. Still hoping your nodules will turn out to be benign. ❤️

@californiazebra Hi Zebra! Wow, I am so sorry to hear about the loss of your brother. I am truly sorry. That is horrible. Thats why cancer is so scary, usually has no symptoms and when symptoms do happen it has already gone to stage 4, like your brothers case. Your poor brother went quick, wow. He had non small cell cancer, correct? It does sound like genetics play a big factor in your families cancer diagnosis. I am pretty sure I have cancer zebra and I am freaking out beyond words. I have no family support or friends, have no one and im pretty sure the doctor when I see him on the 18th will indicate a future cancer diagnosis. Thank you so much for your kind words. So sorry that you and your family are going through a cancer crisis and especially the loss of your brother. My deepest sympathies. Is there anyway we can contact so I can someone with me when I go to the doctors on the 18th. Thank you Zebra!

@joe88
You can send me a private message through this system.

@californiazebra Hi Zebra, thank you for your response. How do I sent a private message? I am new to all this. Thank you

Hi Lisa! @lls8000, thank you for your response! I am truly grateful. I am sorry that you were diagnosed with stage 4 lung cancer, I am happy that you are with us and that you fought a courageous battle! Yes, I have an appointment with the pulmonologist on the 18th with the city of hope. Wait to see what he recommends but what I find shocking is that today on Sept 12th my clinic sent a referral to city of hope, Oncology. On the report, it says benign and to follow up in 12 months with a CT recommendation.