1. < Polymyalgia Rheumatica (PMR)
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Newly diagnosed with PMR- concerns about vaccine reactions?

Posted by judithgrossman @judithgrossman, 1 day ago

I have been diagnosed with PMR in Aug 2026. Currently on 20 mg prednisone (and in honeymoon period?).

I have always tolerated vaccinations (Covid, flu etc) well only experiencing mild side effects for a day or two. Sometimes I experience mild exhaustion and fatigue 12-14 days later.

Now that I am dealing with PMR , am I at risk for heightened side effects from vaccinations? What have been your experiences- particularly if side effects were non- problematic prior to onset of PMR?
thank you

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shelleyletts | @shelleyletts | 14 hours ago
In reply to @kjoed53 "@shelleyletts I'm always skeptical of anyone saying they were told something at a medical facility because..." + (show)
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@shelleyletts
I'm always skeptical of anyone saying they were told something at a medical facility because you never know whether they were told by a doctor, nurse, technician or other. Thanks for sharing so anyone concerned can discuss with their doctor. I only get vaccines when requested by my doctor. I'm not anti-vax either but I'm not going to be aware of interactions with my meds like any of my doctors will be.

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@kjoed53 I think you somehow misunderstood what I said. I said I talked to a woman who had a bad reaction to a tetanus shot and was on a ventilator. Of course she was told this by a Dr, as her condition was life threatening. I also said it was second hand, of course, but that I had heard similar stories. By the way, I have learned a lot from nurses, PA’s, Nurse Practitioners, and technicians. A lot of these people have worked in their area for a long time and are very knowledgeable and helpful. I consider them health care professionals and am always glad to hear their input and expertise. They have much to offer.

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kjoed53 | @kjoed53 | 3 hours ago
In reply to @shelleyletts "@kjoed53 I think you somehow misunderstood what I said. I said I talked to a woman..." + (show)
Profile picture for shelleyletts @shelleyletts

@kjoed53 I think you somehow misunderstood what I said. I said I talked to a woman who had a bad reaction to a tetanus shot and was on a ventilator. Of course she was told this by a Dr, as her condition was life threatening. I also said it was second hand, of course, but that I had heard similar stories. By the way, I have learned a lot from nurses, PA’s, Nurse Practitioners, and technicians. A lot of these people have worked in their area for a long time and are very knowledgeable and helpful. I consider them health care professionals and am always glad to hear their input and expertise. They have much to offer.

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@shelleyletts
I have no doubt that all of those professionals have great insight and a wealth of knowledge and experience, but they can also offer opinions the same as anyone else. Opinions can be based on that insight, knowledge and experience but that doesn't make it factual every time. Even doctors can be wrong. It can be extremely difficult to prove or disprove the cause of many of our maladies, including PMR. That doesn't stop someone from giving their opinion, and by no means am I saying that it should. This forum is open for discussion and that's what we do here every day. Thank you for your input.

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